Waiting for specialist appointment

New diagnosis and before diagnosis
1

Hi everyone.

I had an MRI brain scan for migraines a few months ago that showed juxtacortical, periventricular, and infratentorial lesions. My primary care provider referred me to a neurologist, who referred me to an MS specialist based on my history and symptoms (sudden blindness in L eye at 22, neck and back pain, electric shock sensations down my spine, hand/arm and feet/leg numbness, fatigue, vertigo, etc.) I see the specialist in January and have a spinal MRI scheduled for later this month.

I am currently experiencing a lot of anxiety and sadness even though I don’t have a diagnosis yet. How did you handle the waiting and big emotions that came into play? I like to think everything happens for a reason and that there is something I need to learn from all of this, but today I am just feeling overwhelmed.

2

Wow you know a lot about your MRI brain scan; I’ve had multiple sclerosis 20+ years and not even looked at a single scan, I just take their word for it most of the time.

I temporarily lost sight in right eye (optic neuritis) when I was 19. I’ve experienced the shooting pains (Lhermitte’s sign), numbness (in my legs), weakness/loss of coordination (fatigue) and balance difficulties (vertigo) too.

It’s probably not good for your wellbeing to constantly feel anxious or depressed. You’re in the system now and have an upcoming MRI scan. It’s always best to think positive and hope you’ll get better again soon.
Best regards,
JP