I’ve had a really bad experience at work since I got my first symptoms of MS. I don’t have a wheelchair or a walking aid, so even though I had Occupational Health confirming I have a genuine disability, there were unfortunately people who had a lot of institutional power over me who made assumptions that I was “putting it on”. One of my managers referred to me as “playing the disability card”. He really did say this (more than once) and a lot of worse things as well, which has been kind of heart-breaking, especially at times when I was really struggling with flare-ups of MS and was already feeling pretty low.
Anyway, I made this video about how invisible disabilities can affect people at work. I think it’s something that is being talked about more nowadays, but still probably not enough. Some people still have a stereotypical idea of someone with a disability as being a “person in a wheelchair” - not even a person who a wheelchair, but someone who’s just “in” one, as if disabled people come with wheels attached. A lot of people on this forum will be wheelchair users some of the time, and some might be wheelchair users most or all of the time. Others might use various types of walking aids, sometimes or often, and some might not use anything at all. Whatever our situation though, I think many of us have the experience of symptoms which are not visible to someone looking on from outside.
That’s what this video is about. It would be great if people can watch it and let me know what you think. I’d be grateful for any feedback. Criticism is ok, but please make it constructive, i.e. suggest improvements, or if you don’t like something or disagree with the way it is said, then let me know, but try not to be too harsh!
I am not a film-maker and this is only the 2nd video I have made. It is also text-based, because I didn’t have the confidence to do a voiceover.
*** Epilepsy warning: video contains some flashing sequences and flickering images.***
Here’s the link:
You won’t need a Vimeo account to view it.