Not sure why I am writing anything but just feel it is a means of venting my current feeling/thoughts.
I had steroid injection recently and for 5 days I felt ‘alive’ … no pain, no brain fog and energy lots of energy … I danced around, I delighted in how I felt and couldn’t stop telling my partner how great I felt… it did not last and I guess I went into a state of morning for the ‘me’ that so fleetingly came back and has now again gone !
I know the drill, I have a lot to be grateful for, my life is not bad by any means … of course I want things to be better than they are but after all this time (15 yrs from diagnosis and now secondary progressive) I know that the time to be happy and make the most of things is now … but I still crave that magic pill, the steroid injection which I would have in a shot to give me back what was the real me!
I’m angry that steroids are not an option for health risks etc etc and I know there is no magic pill. I am just so sick of struggling with the brain fog, the fatigue and the pain… I take too many pain killers (co codamol) which at least give me a slight opium boost for a while and I eat all the time thinking that it will give me energy and I really don’t want to continue eating more and more and taking whatever tablet I can but it is a vicious circle …
Anyone else understand any of what I’ve put ? …