Hello all. I am having some very strange symptoms today. Left foot is boiling hot, and right foot is like ice. Has anybody had this happen?
I’m off sick from work. This is the second job that i’ve been off sick from. I fear that I probably wont go back. I can’t remember people’s names. I can’t remember words. I can’t have a conversation, so I end up not speaking.
My right leg is very weak, as is my left hand and arm. I can’t hold a cup of tea in my right hand.
I can’t lift the kettle of my right hand.
I want to change my MS nurse as she is someone I don’t want to see as she’s a very negative person.
I don’t know what to do.
I’ve never been offered any medication.
I haven’t left the house in about two weeks.
Today, my left breast is feeling numb and well, my whole left side has started to feel numb.
I’m also going through the menopause I think. I am aged 50.
I’ve been on the internet today a lot of the day researching Dignitas. I don’t have the guts to go through with it though, so I just don’t know what to do.
I have turned to alcohol. My old friend. I know that I shouldn’t, but when I’m drinking, its the only time I can relax. My brain just seems to be in over drive.
I can’t stop my brain from thinking. I just want to be peaceful and relaxed.
I was diagnosed in 2015. But I think i’ve had MS since 2010 because I had a numb hand, for about three months, with tests that came up with nothing.
I wasn’t told what I had at the beginning. Then a year in, I was told it was relapsing remitting, then last year i was told it was primary progressive. All I know is that my right leg and my right arm just aren’t improving.
So… after this rant and/or explanation as to why i’m posting here… I would like to ask this question?
How do we define the change from Primary progressive to secondary progressive?
Also… I send out love to all of my fellow sufferers… especially those who are young…
The one thought that always pulls me out of my pity party is the the fact that I have had a full and amazing life. I have lived.
Thank you for reading.