Has anyone ever experienced chronic urticaria (hives) on Copaxone? I’d been on it for 18 months and was more or less fine (only the odd injection site reaction but that was about it) but then I started to develop chronic hives. I’ve been breaking out everywhere and it’s not just when I’ve been injecting - it’s been at any time (particularly if my body temperature rises). They look like welts and can become hot and itchy. I saw my neuro, who said that urticaria can be a side effect of Copaxone, so he’s taken me off it (I’ve been off it for a month now), and I’m also taking antihistamines. While there was some immediate effect of coming off the Copaxone and taking the antihistamines, it’s not cleared completely and I’m still breaking out.
I’ve read some other forums (mainly US-based) where this has been an issue and some people have said that it’s taken months to sort itself out. I was wondering if anyone here has experienced it? It’s really getting me down because I can’t even envisage when I’m going to break out, and when I do it just looks really horrible and I don’t even want to leave the house