I’ve just came across the community and it has really touched my heart to see how kind and thoughtful people can be. for me though it was the feeling of yes!! They understand they know the struggle! 3 years ago I started to notice my symptoms, I began to drop cigarettes (I know!! I have since stopped) cups of tea etc., when I dropped the iron and then a boiling kettle I realised this was serious and went to the doctor. I was told it may be carpel tunnel and I would be sent to a physiotherapist, I waited 4 months only to get the appointment be given a wrist brace to wear at night and advised the symptoms normally go away after 6 months, the did not, and they got far worse, the numbness and tingling spreading up my arms, the aching legs, the weak bladder… I then waited 8 months for a neurologist appointment, attended only to be told it was a pre assessment and I would hear back, nearly 5 months later I attended the hospital again and received ERT, I waited for the results which came through a few weeks later which revealed nothing! They referred me back to my Socorro and I gave in I thought I think of this any more with no help it’s going to break me, after a year and being unable to take the worsening symptoms the balance going, forgetting the simplest things, the feeling cold, dreading taking my dog out because you know it’s going to hurt afterwards. I returned to the doctor in March of this year, the doctor advised only my peripheral nerves have been checked I need more tests it’s 7 months down the line and still no appointment.
I hide my struggle well it’s not all doom and gloom! I’ve been at college the last 2 years and just started uni a dream of mine all my life (I’m 31), tbh I don’t know how I got through college and I just can’t have my health coming between getting my qualifications and the life I deserve I just need some help and perhaps a wee blether with someone who understands what this is like!
wow therapy if nothing else aha
good of luck and stay strong one and all