Yes, see a neuro. Don’t ever assume. You could, for example be short of b12. It’s very insulting to all who attempt to help. I have MS because I have a lot of lesions. More lesions than I want to ever see. It’s a horrible disease. It takes so many things from you. It’s the worst f(&$@/.robber. Don’t give yourself ms. It could be M E. go, see a neuro. Find out proper info and get educated. Uthoffs is associated with pjs and secondary ms and there’s NO TREATMENT FOR THESE. Do you really, really want this?
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Ppm, I meant.
[quote=“COSGalto”]
So, why, why why do you want to have MS?
[/quote] I am dying of ms. Can’t you see I’m suffering? doctors have left me to suffer I can’t afford private mri.
Look I think it’s all over now. Its been an interesting journey this life, but my time is up.
[quote=“COSGalto”]
Yes, see a neuro. Don’t ever assume. You could, for example be short of b12. It’s very insulting to all who attempt to help. I have MS because I have a lot of lesions. More lesions than I want to ever see. It’s a horrible disease. It takes so many things from you. It’s the worst f(&$@/.robber. Don’t give yourself ms. It could be M E. go, see a neuro. Find out proper info and get educated. Uthoffs is associated with pjs and secondary ms and there’s NO TREATMENT FOR THESE. Do you really, really want this?
[/quote] everybody with Ms gets secondary ms. In the end. It’s a nasty disease
Everyone’s dying. You are NOT dying of ms. End stage ms is not pretty. Electric wheelchairs, blended food. Total double incontinence. Pneumonia. Is that how you are?
Please allow yourself to contemplate the fact that many people on here have an MS dx - in many cases a recent one - or have (unlike you, as far as I can gather) good reason - objectively judged by medical advisors who do actually know about this stuff - to suppose that a dx is around the corner. Please do just try to be a little bit sensitive to the feelings of those who are getting on with life despite the fact that they actually do have the damned thing and who do not, perhaps, take the view that they are ‘dying of MS’ as you put it in such melodramatic style. And nor are they ‘dying of MS’ and nor am I, who has had it for rather longer.
I have no idea whether you have MS or not. I very much hope you don’t. But you don’t know either, so please think twice before assuming - in this sort of company, for heavens’ sake! - the mantle of a person who has MS until you do have good cause to don that most unwelcome of garments. I accept that you are suffering, and I am sorry for it. But please do not play-act at having MS. Believe me, you will have plenty of time to play that game with live ammunition if you actually do have it.
Alison
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[quote=“alison100”]
Please allow yourself to contemplate the fact that many people on here have an MS dx - in many cases a recent one - or have (unlike you, as far as I can gather) good reason - objectively judged by medical advisors who do actually know about this stuff - to suppose that a dx is around the corner. Please do just try to be a little bit sensitive to the feelings of those who are getting on with life despite the fact that they actually do have the damned thing and who do not, perhaps, take the view that they are ‘dying of MS’ as you put it in such melodramatic style. And nor are they ‘dying of MS’ and nor am I, who has had it for rather longer.
I have no idea whether you have MS or not. I very much hope you don’t. But you don’t know either, so please think twice before assuming - in this sort of company, for heavens’ sake! - the mantle of a person who has MS until you do have good cause to don that most unwelcome of garments. I accept that you are suffering, and I am sorry for it. But please do not play-act at having MS. Believe me, you will have plenty of time to play that game with live ammunition if you actually do have it.
Alison
[/quote] anybody here could be play acting. I don’t know if you’re really ill or just play acting anymore than you know whether I am or not. Some body who appears to be melodramatic may in fact genuinely think they’re dying.
Do not make such assumptions.
I think MSsufferer, that you have scared yourself silly about the possibility of having MS.
I now understand that you are still waiting to sea a neurologist and will then (assuming the neuro thinks there’s cause) have tests possibly aimed at diagnosing MS.
Please be assured, that
It often takes people many years to become progressive. And some never do.
Some people with progressive MS are less disabled than others with RRMS and others more so.
Most people who are diagnosed with MS have relapsing remitting MS. This means that they qualify for disease modifying drugs which limits the number of relapses they experience and thus their degree of disability. The DMDs now available are really quite good.
Neurologists tend not to be overly concerned about the cost of the various tests they do in order to diagnose MS. So it’s not likely that they would do an LP instead of an MRI. However, LPs are often requested because they are useful as a diagnostic tool. If they weren’t, they’d stop using them. Meanwhile, my neurologist (for example) is very keen on using MRIs, is simply doesn’t occur to him to limit the number simply because of the cost. I have had more than 10 MRIs, but only 1 LP. This is because my LP showed the one thing it is used to detect, oligoclonal bands in the CSF, there is no point in repeating it.
MS is not usually a terminal illness, people do occasionally become extremely disabled by it and it’s possibly something that could kill you, a very, very long time in the future. But this is such a slim possibility that proclaiming that you are dying of MS, before you’ve even been diagnosed is quite honestly crap. I’ve had MS for 20 years, I am not dying of it.
If you are still as concerned as you seem (albeit in a rather aggressive way), try to get moved up the list to see a neurologist quicker, try phoning the hospital appointments team, or the neurologists secretary to get a sooner appointment. You are honestly doing yourself no favours by self diagnosing yourself and then deciding that what ails you is fatal.
Lastly, please will you stop being so confrontational and aggressive to people who are simply trying to help.
Thanks Sue
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I think you are indeed play acting and very much doubt that your posts are genuine.
Sue. As in my reply, post 21.
[quote=“Poppy6488”]
I think you are indeed play acting and very much doubt that your posts are genuine.
[/quote] Why should I need to convince you I’m genuine? Keep your negative thoughts to yourself.
Pot. Meet Mrs Kettle. Mrs Kettle meet Mr Pot 
(Actually Poppy is anything but negative usually. Just think they are simply expressing a negative response to your constant negativity.)
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[quote=“Mssufferrer”]
You don’t! Simple as that. 
I couldn’t give a flying fcuk about you to be honest and now I will leave you to your childish passtime while I watch the Rugby. 
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[quote=“Poppy6488”]
[quote=Mssufferrer]
You don’t! Simple as that.
I couldn’t give a flying fcuk about you to be honest and now I will leave you to your childish passtime while I watch the Rugby.
[/quote]you need to stop posting in my threads if you’re going to troll people.
I havent joined in this thread as it has got too nasty.
The OP has his or her reasons for her attitude and as it is upsetting so many genuine people with MS, I ask if the mods will kindly close it down now.
pollsx
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