Tysabri

Everyday living
1

Hello everyone,

I am due to start on Tysabri and I am wondering how anyone works having the dose with working e.g. do you book the day off or take it as sick or reduce your hours?

Any reply would be great! Thanks.

Lauren.

2

I’m not on Tysabri, but any MS clinic/GP appointments that I need my employer lets me take them without having to lose any earnings or use holidays ect.

Speak with your employer, they have a duty of care to help you, and have to make reasonable adjustments for you.

I would certainly suggest that allowing you time off, without loss of earnings or having to use up holidays, can be justified as reasonable adjustments, especially to have medication linked directly to your MS.

I would even suggest, that these days it would be a brave employer that would make you book holidays or lose earnings so that you can have your treatment !

3

I started Tysabri in December and have been fine, no side effects etc.

My work have been great, I have the treatment on a Tuesday at 9am and it usually lasts for 2.5 hours now. My work have said they would rather I stayed off that day. A duty of care. The hospital keep you longer on the first two treatments to observe for side effects etc but after that its usually 2/2.5 hours. Wishing you all the best

Mary

4

Hello,

Thank you for your replies, I really appreciate it. I am thinking of getting in contact with occupational health as I do work at the hospital. I will speak to my nurse to see if I can try and get this done on a Saturday if possible, or try and work round work and having the treatment.

Lauren.

5

Lolley, here’s a link to the MS Soc’s page on which you will find a PDF about your rights as an employee. There’s a section in there about time off and related matters.

Alison

6

Hi Alison,

Thanks for that, I will have a read!

Lauren.

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