I saw my neurologist yesterday because I keep having relapses. He wants me to start Tysabri. What are your experiences of this? He does not want me to leave my MS untreated because it is so active and progressing so fast.
Hi Rebecca Sorry your relapsing so fast I asked the same question a while ago. Are you on Facebook there is a closed page for tysabri users either thinking about it or on it. Lots of good info there. And plenty here to offer advice too. X
By the sounds of it there is a lot of positive stories on tysabri How long have you been diagnosed. I’ve a scan in 2 weeks with Gilenya or tysabri as a possibility. Em x
I was diagnosed 2011 after five years of being in the unknown bit. I have been relatively lucky with it until now. Having only a couple of relapses now it’s caught up with me I’m having back to back relapses. I’ve never been in to see my neurologist and come out do worried purely because he sounded so worried about the rate it’s progressing. I am on Facebook it’d be good to find out what it is like on it. I hope your scan goes ok x
I only got dx in November and having back to back so yeah fun x
Hi Rebecca Yes as said , get on the closed group Facebook , great bunch and have helped me. A lot of positive feed back on there Take care Gray xx