Has anyone done a switch from Tysabri to Tyruko? What were your experiences?
Yes, some time ago. I made a conscious decision to not think about it, and so far so good.
This article was in The Guardian today.
‘It was awful for me’: one MS patient shares her experience with Tyruko | NHS | The Guardian
Thanks - I saw the Guardian article. It’s interesting, but I wonder about the broader context. After all, newspapers do not publish articles saying, “MS patients at hospital X started this new drug and they were fine.”
Indeed, the people using this forum are also more likely to be having issues than not - if life is fine, people are less likely to be on an MS forum looking for answers.
So I wonder whether there is a genuine issue here or whether the majority of people are fine with it. A cheaper drug might mean more willingness to prescribe on the NHS, so it would be a real shame if there are problems.
I have noticed a few posts on the MS Trust facebook page, but doubt it will provide the answers you need. Hopefully, the MSS will provide a news update with some firm evidence.
Hello, my son did the switch quite a few months ago, he has had no difference in how he feels. The only thing now is he became JC positive.
However, the test done is with Tyruko, and Tysabri have their own test!
Now going back on Tysabri so he can take the tysabri JC test, apparently the Tyruko test is more sensitive. Anyway I would like to know if there is a difference in the result!