Hi all,
Hoping someone might have an experience they could share with me.
Diagnosed in November 23 and quickly put onto Tysabri in December 23 (no options given sadly)
My recent scan shows more lesions and continuing activity within my brain plus I’ve just had a massive relapse so I am being scanned again with the potential to change treatments.
I was wondering if there was either anyone who had switched from Tysabri to something else (maybe because of JCV status or any other reason) or if anyone else had experience of Tysabri not doing what they wanted it to do?
Thank you in advance
Gemma
Hi Gemma
The same thing happened to me I was on tysabri for about a 18months then I had a bad relapse basically (short story) was told it had stopped working………I got switched to Ocrevus have now been on that for 3yr luckily I’ve not had any problems with this at all …. I hope this helps you. If thr is anything else I can help with just ask
Take care
Cheryl
Thank you so much for sharing your experience Cheryl. It’s really helped put my mind at rest
Hi Gemma,
I was 1st diagnosed in 2010 with RRMS it was highly active and it seemed a never ending rollercoaster of relapses. And a medical team who it seemed didn’t really know what to do with me as medicines at the time were limited.
Fast forward i have been on Ocrevus for about 4 years and have had no upsets with my MS since xxx
Would recommend it would be worth a discussion with your MS team
Ruth
Thanks so much Ruth
They kept me on tysabri pending another scan. Scan came just after a relapse that floored me (good timing) and should be being discussed tomorrow so fingers crossed they have a plan
Funny the things we are grateful for… the timing of a relapse haha!That sounds positive, hope it goes well…