I have been on Tysabri for nearly 3 years now - and part way through found out I was JCV positive.
Now, those 2 factors combined put me at a higher risk of PML, and despite reassurances from the team at the hospital, I am finding every little thing makes me worry about this risk.
Don’t get me wrong Tysabri has made a big difference to me and my relapse rate…just wondered if anyone else had felt like this and how you are dealing with it. I am thinking about coming off it cos mentally I can’t shake off the woryy about the risk…
All comments very welcome!