I was originally on Tysabri from 2008 to 2010 for highly active RRMS. I stopped the treatment because of a knee jerk reaction following a scare with one of the other Tysabri users at the hospital I was being treated. Nothing came of the scare. It was also at the 2 year point where the risks of PML increases.
I have been taking Rebif 44mg since stopping Tysabri but it has stopped working and I have has a few relapses and an MRI showing new lesions and 3 active ones. The neuro at the hospital I am at now has suggested going back on Tysabri. However, my JC Virus is positive, increasing the PML risk. I was not given the test the last time I was on Tysabri,
I was wondering if there was anyone else on Tysabri with JCV positive? What have you been advised? How long do I have to be off Rebif before statting Tysabri? Ant other helpful information would great.
Thanks, Elaine x