Hi there
Hope everyone is doing well
I am after some advice if anyone is kind enough to give me some.
I am on Tysabri and have been for about three years now and I have never had a problem with it.
What my worry is is that my treatment has been postponed this week as I have an ear infection so am going to have to take a 7 day course of antibiotics and the nurses said they will get me back in in about two weeks to see if I can have my treatment then.
Now although I have had Relapsing Remitting MS for a long time I started freaking out that my immune system will “wake up” in that two weeks and attack itself and when I do get my treatment it wont work. I know it sounds completely unreasonable and for that I apologise but I am genuinely worried.
Am I being soft? Don’t worry I wont get offended 
Hi, just saw your post hadnt got any replies.
I always feel sorry when that happens. as we rely on advice from our buddies here so much…I know I do.
I dont use DMDs, but just wanted to say, try not to worry too much. if your immune system does go awry for a short while, hopefully it will return to what it was before long.
I dont think any long term damage will be done.
luv Pollx
Dear Cola Pop
I’ve had rr for about eighteen years, and for about five of those years I was on Avonex. I hated the injections and hated all the fuss preparing to inject, on holidays, when travelling and so on.
I don’t know about Tysabri, but my neurologist told me that after a few years it was quite normal for people to take a break from DMDs as the body built up some sort of ‘memory’ capacity allowing you to stop for a while after that. As it always ruined my day I was keen to stop. He spoke to me about alternatives but I’m on nothing now, and have been like this for three or four years. So far so good. I’ve had some smallish episodes but nothing much and about the same as when I was on Avonex.
It may be the same for Tysabri, and I doubt you would have been encouraged to take a break if it would endanger you.
Wishing the best for you.
Mark
I’m pretty sure that any rebound effect would take a lot longer than 2 weeks to kick in so I wouldn’t worry about it if I were you. Why not speak to your MS nurse to get some proper reassurance though?
Karen x