Hello, I’m just after some advice please. I hope this post finds you all well.
I’m 36 and have Tourettes with complex tics, motor and vocal. Sometimes I have to use a wheelchair because of the severity of my tics in certain situations.
Anyway 3 toes and a chunk of my right foot went numb 6 months ago. I have a posession style please exorcise me back tic! Where I literally bend over backwards. I tought this was why my foot went numb. I had a back xray and all was fine.
Bloods discovered a folic acid deficiency, brilliant I’ll be cured!
Been on folic acid for 3 months and I’m not getting better, I’m getting worse. My gp has referred me to the neurologist to have an mri, due to the tics I’d need a ga. I’m still waiting for this.
I’ve got a mass of symptoms that I’m really hoping aren’t ms.
I’m visually impaired and have one good ish eye. I’ve had trouble focusing that eye and I’d naturally presume it’s the eye disease progressing. But it’s almost like a white blur that appears then goes. It’s strange.
The gp tested my legs, the left leg didn’t react the same as the right leg. And almost all day every day my legs feel weak kinda like when you have a general anaesthetic and it runs through your veins. Weakness running through my legs. I’m stumbling when I turn right. I’m mixing my words up, saying it right in my head but speaking something else. Making ridiculously stupid mistakes at work.
But the tiredness, well. I cannot keep my eyes open.for the first time in years I’m sleeping all night and falling asleep in the evenings. Sheer will is keeping me awake at work. Though I’m not getting half as much done at the moment I physically can’t do it. I hate feeling like this.
I thought I had raynauds as my fingers can go white cold with a slight breeze, yet I can submerge my hands in cold water and they’re fine. I cam hold a pen and get numb white patches on just the parts of my finger I’m holding the pen. And recently my hands go bright red and boiling hot the finger tips hurt so so much. Just relaxing, off they go into hell fire!
I’ve started getting headaches and we’ve been through 3 beds in 2 years as I thought that was why I had a bad lower back.
The gp tested my legs my eye, etc been on the folic acid 3 months.
I’m in bed now and have the weakness feeling running through my legs. I’ve also got little tingly patches appearing then going on my cheek and forearm and this weird horrible pain that wakes me up in the tip of one small toe, and some random new pains.
The numbness has receded from the outside of my foot but it still feels like I have a block of numbness inside my foot. Bizarre.
But the most bizarre thing which is why I think it’s something to do with my brain is my tourettes has eased. Tics wax and wane but I’m not ticking much at all. Granted it’s a blessing since they are so bad. But I’m not right.
I needed to talk to someone. And I’m only just admitting to myself that I could have ms. Though I’m really hoping I’m just so deficient in folic acid it’s taking months to feel better.
Any words of wisdom before I see the neuro please.