Hi I was diagnosed a couple of weeks ago and feel totally shocked and miserable! My diagnosis has come after suffering 13 years ago with problems with my vision when i was 6 months pregnant with my youngest son. At the time I was told that it could be pregnancy related but could be an early sign of MS. I have had no noticeable relapses since until about 18 months ago. My bladder became very weak but I put it down to having four big babies and getting older! I then had a few occasions of heavy legs and a blood test last summer showed my vitamin D was extremely low I was referred for a MRI on my spine in October 2015 which showed something at the top of my spine and was referred for one on my brain. In November 2015 my 22 year old son was diagnosed with bowel cancer he had major surgery resulting in a him having a Stoma and six months of chemo which he has just finished and now this. Since my diagnosis 2 weeks ago I am so tired all the time, my legs are heavy and I am sure sometimes my speech is a tad slurry. I think I have been running on adrenalin since my son has been ill and all the symptoms ive had I have put down to stress over my son but now he is coming to the end of his treatment it is like I am listening to my body again- I feel exhausted even after a nights sleep my bladder does its own thing my legs are weak and heavy and I am struggling to function normally I am on no medication at the moment and neurologist said he will see me in 12 months unless i develop more symptoms I am worried about He has referred me to a MS clinic.
Thanks for your reply. I just feel so low at the moment. The tiredness is the worse I sleep well but feel so tired when I get up. I am sure once I see MS nurse I will feel better. As my son is on last cycle of chemo I have get my diagnosis pretty much to myself other than my husband and parents. My kidsjust think in a bad mood and tired cos I’m getting old ha ha I wish x
hi, as a loving mum, no wonder you are feeling so stressed…having a child with cancer is bound to knock you for six, as well as your son. I hope his treatment has been successful.
now it`s over to you and your health.
obviously something`s wrong, which needs attention.
you should ask to see a continence nurse as there are some good meds to calm your bladder
try to get your family to share out the chores of daily life…if they do,they`ll have a healthier and happier mum!
I wouldn’t be happy waiting twelve months to see my Neuro though. I’m afraid I’d be on the phone on Monday to the secretary asking for an appointment asap. I’d be begging for medication now. Can your bladder issues, speech and leg problems not be considered as relapse related, so you can start dmd course? I wouldn’t be able to sit and wait for something to happen. No matter how hard it might be to get to or inconvenient, do go to that ms clinic. You need support and as much knowledge as you can get now. The very best of luck. x
Hi what a terrible time you are having, I hope your son gets on well and makes a good recovery. You need help and support to get through the worry of his illness and you need support and advice to help you with your diagnosis. Take things slowly, there is a lot going on for now but I am sure with the right help you will be in a much better place a few months down the line.