I was diagnosed on Friday with MS and now have an appointment with the MS nurse on Friday 25th May. My consultant said he wouldn’t recommend DMD at the moment as I had only had two relapses, the last being January 2011. But I didn’t have time to explain that I think I’ve had at least had a couple more. My MRI scans show at least 30 high signal lesions. Part of me does wonder if its because of the cost,(I’ve got a copy of the BNF and they are all a lot of money per month).
I’m not even sure what a relapse would be like. All I know is that sometimes I feel reasonably ok and then I get a patch when I feel pretty rubbish for a week or so. The fatigue, numbness, balance etc is always a lot worse then. If there is a chance that DMD would reduce relapses or slow down disease progress then I think it’s a chance worth taking.
How on earth does any one make a decision?