I’m thinking of applying for PIP. I was diagnosed with RRMS in Oct 18 and have been on Avonex since Mar 19. I work full time and I’m finding it so tiring which is then impacting my fatigue and symptoms. I’m lucky mobility wise, so won’t get any points in that respect, but I do think I’ll score about 9 on the daily living part. The biggest thing I’m worried about is would I be waisting their time because I’m a low scorer? I know I’m fortunate in the grand scheme of things and compared to others.
I’m also struggling to think how I’d describe my fatigue well enough. For example, some days I’m so fatigued after work that I can’t prepare a meal, but I don’t use an aid, I just ask my husband to cook or we get a take away. I know I’m lucky to have these options. Basically, my life has reduced to working 35 hours a week, falling asleep at lunchtime, doing nothing in the week after work, but managing a few social things when I’m fresher at the weekend, or off work on annual leave. So, I’m basically knackered and thinking I could use the PIP money to replace some of my lost income if I was able to reduce my hours at work. Any thoughts would be appreciated! Thank you. Jo.