[quote=“greenhouse”]
Hi Marcus, it’s extremes for me too, in the mid 20’s will do nicely thank you, take care, Jean x
[/quote] Hi jean, thanks for your reply, I agree. Takecare Nicola x
[quote=“Cactus”]
Hi Marcus
I can’t stand the cold, and feel fantastic when I’m in a warm, sunny climate. I used to love skiing, but am wondering if I will ever want a skiing holiday again…
H
[/quote] Hi, H I have always loved hot hols but I haven’t been abroad for 5years and know having ms I don’t know if I feel feel different. And as for skiing personally wouldn’t put myself or anyone else in danger lol takecare Nicola x
[quote=“jaki”]
Its extremes in the weather that make me ill,i love the sun, but only up to about the mid and late 20s,if it gets too hot i struggle and my fatigue is really bad, also when its really cold like today,i feel ill, and the worst thing for me is the humidity, i am totally wiped out when its humid.ms wise i always feel better spring/summer adn i hate the winter because thats when most of my rlepases happen,jan/feb time.
[/quote] Hi, thanks for your reply takecare Nicola x
[quote=“Byrony”]
Hi Marcus,
The extremes of cold and hot are the worse for me. I can’t stand the summer because fatigue hits in. During the winter my energy levels improve but other symptoms like spasms seem to worsen. I could just do with it being springtime all year round!! Fat chance.
Sarahx
[/quote] Hi Sarah, yes agree an all year spring would be perfect, thanks for replying takecare Nicola x
Hi Marcus
I feel better in the cold - so Scotsland is good - just going to book my ticket now - lol
;-))) Mary
hi there
i defo find the cold make my ms worse my legs become so stiff and tight struggle to walk. not been out for the past 3 days stayed in with heating on 24 and still felt chilly through out the day i’m not even thinking what my heating bill will be when it comes but i need the warmth.
take care
jenny x
Hi Nicola I don’t really notice too much of a difference really whatever the weather tbh but I am very stiff all the time, just to varying degrees. I get a bit flustered in pouring rain cos I need to hold on and everything is wet and slippy and I need my hood up and then I can’t see around me so well, lol. But, the worst for me is wind cos I just cant keep my balance! Cheryl:)
[quote=“theorising”]
Hi Marcus
I feel better in the cold - so Scotsland is good - just going to book my ticket now - lol
;-))) Mary
[/quote] Hi Mary, Scotland would be perfect for you then! It feels like Scotland in Wales at the mo lol thanks for your reply nicola x
[quote=“blakey”]
hi there
i defo find the cold make my ms worse my legs become so stiff and tight struggle to walk. not been out for the past 3 days stayed in with heating on 24 and still felt chilly through out the day i’m not even thinking what my heating bill will be when it comes but i need the warmth.
take care
jenny x
[/quote] Hi Jenny, thanks for your reply I know what you mean with your legs and I get the same with my hands after taking the children to school the last few days because it has been so cold in good for nothing when I get in, I need to defrost! Lol then when my hands start to come back to life they feel numb and tight especially my finger tips so then I need to put them under water to get some relief! Strange. Keep warm, Nicola x
[quote=“Upytupy”] Hi Nicola I don’t really notice too much of a difference really whatever the weather tbh but I am very stiff all the time, just to varying degrees. I get a bit flustered in pouring rain cos I need to hold on and everything is wet and slippy and I need my hood up and then I can’t see around me so well, lol. But, the worst for me is wind cos I just cant keep my balance! Cheryl:) [/quote] Hi Cheryl, thank you for your reply I don’t like the wind either! Takecare Nicola x
Hi,
I find that anything over 20C renders me useless with fatigue - my onboard thermastat really seems to be broken. I’m finding now that this cold weather is making me really stiff, though. Last night, I put a cardigan on because I was cold and once I was nice and warm found I didn’t have the energy to get out of the chair so had to take it off and cool down before I could get up! I got upstairs to bed and was freezing! Had to wear my fleece dressing gown in bed til 3am so I could get to sleep, but had to take it off so that I didn’t get too hot in the night or I wouldn’t have been able to get out of bed. I know my MS Nurse and Neuro are a bit concerned about this heat thing. I find that hot meals wipe me out as well, so I tend to let hot food cool down or go cold before I eat it. Isn’t this MS great - not!
Heather
Hi (Nicola- if that is your name?),
My name is ‘Marcus’ although my initials are ‘MS’ (unlucky or what!). I have had ‘MS’ for ~13+ years and I have found that the ‘heat’ disables me but like everything else with ‘MS’ - it is ‘erratic’. I have found that Lanzarote is ‘manageable’ - I have been there nine times and it looks like I’ll be going back? (there was one year when it didn’t go right and that was a 'complete waste of time! (and money) but ‘generally’ it is OK. - It is Hot but I reckon it is the ‘constant breeze’ (it’s not cold but rather it ‘cools’ things down that makes it manageable). The sun is still hot (obviously) but I try to keep out of it at ‘hotter’ times of the day and I try to ‘go for a dip’ in the pool (when I feel like it) but that is the ‘tantamount’ (good word) thing - ONLY WHEN YOU FEEL LIKE IT - (and apparently everybody is different!). You have to make the choice yourself and it helps if you have someone who is ‘sympathetic and willing to help’ - I have my wife (whose own brother has MS and although from Northern Ireland - he is a ‘Head teacher’ in england, (and he has 3 girls) ).I am Scottish and (in my experience of 55 years) - it can be changeable, sometimes ok sometimes not so good! (a bit like MS).
Find out what is best for you! - it’s your life!
Marcus.
Dear Heather,
I’ve just ‘read’ your message and my symptoms are very similiar but the only thing that is ‘different’ is that I am not ‘Female’ (at least that is what I understand?)
Marcus.
Very much like other contributors, extremes in both directions although Ive always hated winter because as a child I used to get terrible pins and needles in both my hands and feet whilst trying to thaw out. I used to cry because of the pain.
Now Im beginning to wonder if lack of vit.d might have some bearing on some of our problems. There has been an item on the news this morning about it, lack of sunshine. We dont get a lot here. I reckon holiday on the nhs to somewhere more moderate would suffice, what do you say? My osteo consultant also suggested a holiday somewhere where vit.d might be readily available.
bren
x
Hi Nicola I’m like Poll, 22 degrees and not much more suits me fine. I feel like I can’t breathe in hot weather and am so tired. Teresa xx
[quote=“marcus1”]
Hi (Nicola- if that is your name?),
My name is ‘Marcus’ although my initials are ‘MS’ (unlucky or what!). I have had ‘MS’ for ~13+ years and I have found that the ‘heat’ disables me but like everything else with ‘MS’ - it is ‘erratic’. I have found that Lanzarote is ‘manageable’ - I have been there nine times and it looks like I’ll be going back? (there was one year when it didn’t go right and that was a 'complete waste of time! (and money) but ‘generally’ it is OK. - It is Hot but I reckon it is the ‘constant breeze’ (it’s not cold but rather it ‘cools’ things down that makes it manageable). The sun is still hot (obviously) but I try to keep out of it at ‘hotter’ times of the day and I try to ‘go for a dip’ in the pool (when I feel like it) but that is the ‘tantamount’ (good word) thing - ONLY WHEN YOU FEEL LIKE IT - (and apparently everybody is different!). You have to make the choice yourself and it helps if you have someone who is ‘sympathetic and willing to help’ - I have my wife (whose own brother has MS and although from Northern Ireland - he is a ‘Head teacher’ in england, (and he has 3 girls) ).I am Scottish and (in my experience of 55 years) - it can be changeable, sometimes ok sometimes not so good! (a bit like MS).
Find out what is best for you! - it’s your life!
Marcus.
[/quote] Hi Marcus, yes I am Nicola lol Marcus is my little boys name ( fab name!) it is a chance I’m going to have to take going abroad, i can’t let ms rule my life just yet. Takecare nicola
[quote=“Tree65”] Hi Nicola I’m like Poll, 22 degrees and not much more suits me fine. I feel like I can’t breathe in hot weather and am so tired. Teresa xx [/quote] Hi Teresa, this is my concern if I go abroad will it just zonk me out for the holiday, because we havent been abroad for 5years. Thanks for the reply. Nicola x
[quote=“yawn”]
Very much like other contributors, extremes in both directions although Ive always hated winter because as a child I used to get terrible pins and needles in both my hands and feet whilst trying to thaw out. I used to cry because of the pain.
Now Im beginning to wonder if lack of vit.d might have some bearing on some of our problems. There has been an item on the news this morning about it, lack of sunshine. We dont get a lot here. I reckon holiday on the nhs to somewhere more moderate would suffice, what do you say? My osteo consultant also suggested a holiday somewhere where vit.d might be readily available.
bren
x
[/quote] Hi Bren yes I’ve heard about vitD and a lack of it could be a cause. I do believe stress played a huge part in my ms because I had a few years of a lot of stress in my life then not long after I had my first relapse. Defo a hol on the NHs would be just fantastic! We can dream. Thanks for your reply Nicola x
I was going to ask a similar question today as I don’t seem to be handling the cold very well. No matter how much I wrap up, I can’t seem to stop shivering and get warm. I am sitting here in my shop with two heaters on, wearing layers of clothes including fingerless gloves and a scarf that has microwaveable heat packs in the neck and the two pockets at the ends of the scarf to keep your hands warm. And I am still shivering - Brrrr. My legs seem to be stiff when I get up to walk and my foot and toes seem more numb than usual.
I haven’t been in extreme heat since I was diagnosed in July last year, but was definitely better on a pleasantly sunny holiday at Christmas in Spain.
I just want to curl up in the warm and sleep!