Another scorchio day here in Margate just been eating ice cream with my grandsons while Heather phoned the MS nurse
Hope you are all fine, I feel better now that I am cutting the tizanidine down and Heather has got me an appointment for next week YAHHH she is an ANGEL
Hi Don, Itās awful to be written off isnāt it? I remember my neuro saying just get on with your life the best way you can. Still you have to remain positive. Well it has started pissing down here and my washing is soaking. Glad you are feeling better. Take care. Mags xxx
My neuro was kind enough to admit that there is no medication but to avoid trite remarks about how I should approach my future. Iām not ready for any scrap heap and while I have looked into options for the future, Iām still coping with full time work so yah boo sucks to the MS!
I had a very positive review with my physio last week, so the scrap heap is going to have to wait a while longer for me to join it!
Noreen I love life and most of the time I wear a smile it confuses people who think AHH POOR DISABLED MAN HE MUST NEED SYMPATHY. Life is for living, this aināt a practice run. We only get one shot at life so enjoy it whilst we can.
My neuro was kind enough to admit that there is no medication but to avoid trite remarks about how I should approach my future. Iām not ready for any scrap heap and while I have looked into options for the future, Iām still coping with full time work so yah boo sucks to the MS!
I had a very positive review with my physio last week, so the scrap heap is going to have to wait a while longer for me to join it!
[/quote] Yah Mitzi way to go I gave up when I couldnāt cope anymore and whilst I donāt think I am on the scrap heap they canāt do much for me so PPMS feels I am scrap they go through the motions but canāt cure me just fire fight each new symptom.
I can tell your a man that loves life Don, it comes through in your writing:-) I love life tooā¦no matter what it throws at me. Iām touching wood has I write this Have a great day
Hi, My husband died from Cancer in May, I managed to infect a cut on my toe and spent two weeks on antibiotics, I couldnāt put any weight on my left foot, had a fall, and now have carersā¦sorry, support workersā¦coming in twice a day. I saw my neuro for review at the start of June. She was running an hour late. When I got in to see her, the first thing she asked was āHave there been any major changes since I last saw you?ā at which point I burst into years. When she realised she wasnāt going to get much out of me she said sheād call me back in a few months and get the MS Nurse to come out and see me. I was then bustled out of the room. So, yes, I well understand that some neuros have the subtlety of a brick. When I was first diagnosed back in 2007, my then neuro told me to stop crying because he needed to talk to me! On the plus side, the district nurse discharged me yesterday because my toe/foot looks a lot better. Now to strengthen my leg muscles up again which have turned to jelly as a result of being sat on my backside in a wheelchair for 6 weeks. Being on my own now with two boys has made me more determined to get some health back. When others are around to do things for you, itās easier to just let them do it, but it turns you into a vegetable. It turns you what others expect you to be like. Time to break the mold. Heather
Very sorry to hear about your husband Heather. I hope you have friends/family to talk to about it. Please feel free to private message me anytime if you want to talk. People tell me Iām a good listener
Heather what a wonderful name (my wife is called Heather) glad your toe has healed up feet are so painful when you get something wrong with them. Sorry you have had so much to cope with. I have tried hard not to turn into a veggie ( I am an ex butcher slaughterman so against vegitarianism) I cannot walk anymore but it has taken over twenty years to get virtually wheelchair based but I keep smiling. but sometimmes I am other timmes I am and Ican cry at the drop of a hat now I have become an emotional wreck
Hi, It is really interesting to read different experiences. I donāt live in the UK and my diagnosis seems to have been quite quick. I did go to a MS specialist centre who told me it was probably PPMS so no treatment. I did eventually ask my neurologist about a MS nurse and I had one appointment during which I was quoted statistics about who was likely to have each type of MS. I felt it was a waste of time, I havenāt been back. No drugs, no advice just muddling through and not sure if I should be doing anything special.
As I read this I just cannot believe there are fellow sufferers who seem to have no medical support. I did have my second neuro say āits just MS symptoms get used to itā but Luckily I was able to get another one who is fantastic and now I shall appreciate him even more.
Sparkle speak to someone there are thing that relieve bladder problems or spasiscity or vit d etc all these things and pain relief all make life easier for me.
Don
MS10999B my doctor fights for every and anything for me, I have some great MS nurses and OTās
I have a lovely supportive gp and husband/family so all is not lost. In fact compared to a lot of threads I read on here I count myself as one of the lucky ones
Have a great day