It’s all good fun so long as we don’t weaken. I am in bed with chronic indigestion it hurts, serves me right for finishing off Heathers left overs tonight. She had some chicken in sauce left half of it and gutsy finished it. I am now waiting for my last lot of Peptac to work. So far no joy. Still could be worse Heather could be moaning at me to go to sleep… OOOPS spoke to soon she has just woken up. No peace for the wicked even when they are suffering.
Hello Don, I was feeling sad this morning and read your post, you always make me smile, im always disturbing Lee needing wee’s all night. I get scared to drink anything. I loved what you said about being lucky in love…thats worth everything Don, ive had an awful week loads of bad stuff but Lee’s been amazing!
Don, if only there was a device which told you when the next available disabled space would be free. If you can see on your phone when the next bus will arrive (I’ve tried it and it works) then surely? The last time I saw the neurologist he didn’t even try to sound hopeful. I told him of my hope and how it counted for more than his banal prophecies. I restrained from asking him how many other people he had written off and that if someone on his salary may actually work a bit harder for those he has been prepared to drop off the edge of the boat.
Enjoyed your blog, as always, thanks. It’s always pot luck when trying to get a disabled parking spot, I like Steve’s suggestion.
Like you, I have had ms far too long , damage already done, unfortunately, but I so hope that a cure will come in the future for newbies. Back in the 80’s when the neuro said a cure is just around the corner, I felt quite optimistic, but that feeling went yonks ago.
Your quote in your blog reminded me of the chorus of a blues song
‘Born under a bad sign
Been down since I began to crawl
If it wasn’t for bad luck
You know, I wouldn’t have no luck at all’
The only thing that keeps me going is the hope of a cure, but then, I am chronically delusional. Perhaps I will wake up tomorrow with a spring in my step and cycle up K2.
Best wishes
Alun
Humour Disclaimer – For the sake of clarity the management wishes to announce that the above is an example of life affirming gallows humour and should be encouraged at every opportunity.
I see the new ‘cure’ for MS is all over the news today…but there’s a long way to go & the chemo is so awful that you have to be as fit as a flee to live through it! (I see on person in the trial did die). But it is another step forward. Not sure if it will ever be available to us oldies but please God it works for those who come after us.
Precisely what I think. I find it so frustrating that it’s still mostly all about drugs and therapies which basically just knacker your immune system - I do hope that these therapies will one day seem very primitive. People need their immune systems!