Where to start? Cant have DMT’s till 2 documented relapses. I was able to google the symptoms an deduce what I had before my 3rd major relapse (which happened to be optic neuritis) - thank God it was finally that so these idiots figured it out and finally admitted i was right for about a year. Not before it severally damaged my right leg.
Then the pain. The number of times they tried to get away with giving me amitriptyline is comical. They can stick that amitriptyline up their arse. Now I have graduated to Gabapentin which does nothing more than help the burning feet. Really? There is nothing else i can try? Nothing??
I’ve had a relapse since tecfidera however they are unwilling to try anything else. Hard to get a lot out to the neurologist during my allotted 4 minutes every 6 months.
The muscle seizures after showers. God forbid the local doctors give you a muscle relaxant for that. Oh but they dont want you to get addicted. But its ok for me to be addicted to pain everyday and dread showers like i used to dread the dentist.
And the steroids. The hoops some doctors make you jump through are a complete joke to another just giving you a script.
So I have decided to take matters into my on hands, since the health care system has completely let me down. I am searching websites and EU doctors to find out what else can be done. As long as we are apart of EU we can use their doctors right? I am making some headway and wondering if there were any like minded people sick and tierd of the ridiculous bureaucracy that is willing to sit there and watch me deteriorate in cruel and painful way. I know I am not the only one out here after reading these boards