I have a couple of queries I was hoping someone could help me with. I am going on holiday to Turkey in August and am very worried about flushing in the heat. Unfortunately i flush almost daily 4 hours after taking tecfidera for about an hour - bright red and very sensitive. I have been on it since last August, so definitely not going away (already take anti-histimine and aspirin didn’t help). I really don’t want to have to limit myself on holiday and have flushing dictate how / when i go out. I have to deal with the embarrassment of turning bright red (it looks toxic) at work every day. I know this isn’t a big deal in the grand scheme of things - and I have definitely dealt with much more embarrassing moment due to MS but it does affect me.
I also have a query on alcohol. I know many have not had any issues with alcohol and tecfidera, however after drinking I am almost always very sick. I don’t drink regularly, however in the past couple of months I have had several big occasions where I drank from as little as 2 drinks to as much as … i lost count! I was very sick the next day and couldn’t face food - definitely not like me - my mother told me to never part with my drink as it was bought and paid for lol! I’m going all inclusive and the thought of an afternoon cocktail and any other (sensible ) drinking being off the menu really annoys me. I’m a girl who hates being told what i can and can’t do. I’m feeling very restricted by this blue pill at the moment.
Do you think it’s advisable to take a break from the Tecfidera for my hols? I have my annual appointment with my neuro before I go and it will definitely be a question i ask. My only worry would be that stopping may cause a relapse (I relapsed after stopping Avonex, and was told by the nurse afterward that this was expected).
I’m really looking forward to this holiday as it’s been a difficult couple of years and i kind of resent making provisions for a little blue pill!
Thanks for any response in advance.