Symptoms

New diagnosis and before diagnosis
1

There must be so many people that come on here worrying they have ms, as they have a lot of the symptoms,but it turns out to be something else,like a certain vitamin deficiancy or something easy to treat ,which is obviously great ,and im hoping that i will be one of those.So i thought if i put down a list of some of my symptoms and it does turn out to be something else or even if it is ms it might help people that come on here in the future

My current symptoms are =

buzzing/tingling/pins and needles all over

double vision/fuzzy

feeling very light headed/dizzy

feeling like things are crawling under my skin

burning on certain parts of my back

my skin is very oversensitive to touch

sometimes feel like skin is very itchy

urination frequency

The last 2 weeks

numbness on the right hand side of my face ,especially my nose and my mouth ,going up to my ear

sometimes my big toes are numb

my hands feel different ,very stiff and index finger feeling numb

aching ,my legs and arms ,feel i cant do alot

so tired

memory is dreadful

My god thats some list !

Does anyone else on here find there hands feel very tight ,numb,achey ? Ive only had this the last few days and its wiorrying mre as i use hoists alot in my job, and i dont need my hands to be going strange on me .

from Sam x

2

Hi Sam,

I can (at some stage or another) tick most of the symptoms that you’ve mentioned - sensory issues are very common. For me though it’s largely my legs/feet which are affected. They get very stiff, achy and painful and I tend to have a lot of stabbing pains in them, all of which affects my walking - as does my balance which is shot to bits.

That said I do get random numb patches in my arms (mainly), as I write I have a patch just below my right elbow…grhhh…

My left hand and fingers get very tingly and then go numb but this is also random.

Memory and cognitive issues are quite a big thing for me and when I’m real tired or unwell I talk complete rubbish - my own form of language which I call my devil tongue!

I’d see how your hands go - don’t hesitate to contact your GP or neuro’s secretary if they don’t improve or if they get worse.

The staysmart website is worth looking at for tips on memory issues. You can either google it or access it via the ms trust website.

Hope that helps

Debbie xx

3

Oh ill have a look at that ,thanks Debbie :slight_smile:

Ive got an app on tuesday with me gp so ill mention it then .

I dont get the numb patches on my arms at the moment .Its mainly on my face ,ive even got it in half my mouth today ,my teeth feel very strange ! My nose feels horrible ,i hate having it in my face .

My legs dont feel stiff like yours do .For me its more like they feel abit like jelly ,very wobbly .They have constant tingling with shooting pains at times .I feel like i have to think for a second about moving them before i get up .The numbness has only ever been in my big toes on my lower body .

Sam x

4

Hi Sam,

What I hate about this monster - apart from having it all - is that it can afffect anywhere. I quite often get tingly lips and a twitching eye which is most annoying…

Def’ mention it to your GP - if he can’t help then contact the (dreaded…LOL…) neuro’s secretary…

I often play memory games too which I think does help with the cognitive thing…I’ll try anything - within reason that is…LOL…

Debbie xx

5

Lol :slight_smile:

6

well, we gotta laugh right…

7

Hi Sam That is some list, nd you have just described exactly what I feel, except over the past 3 days my left leg goes week, then tight and muscles pull. Generally this happens 1st thing in morning and last thing at night, when it causes most inconvenience going up or descending stairs quite rapidly on my bum. My left arm looses feeling unexpectidly, but more apparent when putting pots away, broke that many I should work in a Greek restraint. As I am seeing neuro on fri I will wait for his take on it hen go nd buy some paper plates I can’t break. I am glad that you have the ability to still work despite all this and hats off too you or it, you have a distraction, I can’t as I pose a risk to myself and others, I made this choice pre diagnosis before I was refused entry to certain sites, but would love too when hopefully my symptoms subside. I hope you feel better soon and don’t let it get u down Mike x

8

Thanks Mike :slight_smile: I try not to let it get me down and try and keep as busy as I can . My neuro did tell me I shouldn’t be working at the mo but I’m a carer so if I don’t go to work I don’t get paid . Hopefully my hands won’t get to much worse . How long have you been getting your symptoms for Mike ? I’ve only been having problems for about 2 1/2 months and it’s driving me crazy already ! Maybe once I’ve had my MRI and have hopefully a few answers I can try some different mess , I don’t know ? Sam

9

Hi Sam I was diagnosed 17/5/12. I had been getting worsening symptoms or last 4 years. I have had 2 relapses in 5 months. With the last one I ended o In hospital, where I was diagnosed. Hope you get some certainty, it helps. If +ve you know and it’s a new chapter. It changes your life, the MS resources on this site are great and having like minded, non judgemental people o talk to and share experiences is great. You just have to be positive, it is hard but it can be done, and you will feel better for it. Take care Mike

10

Sam Orry about the new sentence I have fingers that go off on one if I do not use voice tying. Mike

11

I know what you mean Mike my fingers are getting worse on the computer.

I understand what you mean about a new chapter ,i (just like alot on here ) just want to know why im feeling like this .

Ive woke this morning and my hands are so stiff and sore ,dont know how im going to walk my dogs this morning .

Last night i had the worst burning sensation at the top of my back ,right hand side,but it was very cold to touch ,a horrible uncomfortable feeling .I feel like all i do is moan at the moment and i hate that .

How did they dx you at the hospital Mike? was it through a scan ,just wondered .

Sam x

12

Hi Sam

Just like others, I too could tick most of your symptoms list. Limboland is awful but I hope you get some answers soon. I seem to type and lose it all, then type again and lose all that too, so I do understand about fingers not working properly!

I get what I can only describe as a buzzing feeling inside (even when Im not jerking or twitching on the outside). Its very hard to describe the feelings I get but I keep saying to my doctor that its like when you have pins and needles in your feet and tred on something cold and you get like a buzzing feeling. Its weird also when I feel like Im twitching but Im not :s My kids have nicknamed me ‘twitchy’ which is apt! I have also got a numb face from under my eye to halfway down my neck and halfway through my ear. But only on the right side… strange though eh.

Good luck and take care xx

13

Yes my face only seems to be numb on the tight side as well . I can even feel it in my mouth and up to my ear which sometimes feels blocked . It hasn’t been as bad in my face the last 2 days , which is good . At the moment my hands are really bOthering me , they are so stiff and sore . I often say to my husband that I feel like I’m plugged in to something lol cos of all the buzzing etc From Sam

14

Hi again Sam

I can feel the inside of my mouth is numb too… very weird feeling. Plugged in is a good description. I have had blood tests for arthritis as often feel I ache all over. Thats been going on for at least 3 years too. When I look back over the years I can think of all kinds of strange things that have been happening to me. Luckily I am being listened to by my new GP and am seeing a neurologist on 3rd July (sooner if they get a cancellation). Ive been on beta blockers since Saturday and the right arm jerking uncontrollably has calmed down alot and Im just twitching. Again mainly my right side. Im looking forward to getting some answers as I really am fed up with feeling poorly now. It does get me down at times.

Good luck Sam and take care xx

15

Im glad your new gp is listening to you,it helps so much to have a great gp .Ive just been to see my doctor she is lovely ,she told me the neuro has wrote to her and told her that unfortunately he thinks i have ms :frowning: must admit i was abit upset , as i thought there might have othrer possiblities on the letter as to what it might be , but there wasnt.

Sam

16

Hi Sam. Im not sure why the neuro has said that to your GP; did he/she also say that to you? So what happens to you now? Im only wondering as Im not dx yet and really dont know how it all works. Have you been given any meds to help you? I have just finished a 3 week course of steroids, and Im now on beta blockers and amitryptiline. Im also on tramadol for pain. Never taken so many tabs in my life! Hope you feeling a little better now, it is all so scary isnt it. They are a great bunch on here and I have certainly had an online rant at times here, but everyone is so supportive, which is really what we all need. There are also people who are just so well informed too, so this is a great site for asking for advice. Good luck and take care Sam xx

17

Limboland is such a difficult place to be in and our emotions can be all over the place, I know mine were

Just like you now Sam, I knew it was highly likely to be ms before I was officially diagnosed. In some ways it makes it easier 'cos you kinda already know what to expect but of course it’s a lot easier to be able to say that retrospectively. It’s not how I felt at the time.

Mike is right, try to stay as upbeat as you can. The only thing I can suggest is not to concentrate too much on the ‘label’ ms. Once you are diagnosed then you’ll have better medications, treatments and support services available to you. Those alone can make an incredible difference to how you may feel on a day-to-day basis. It doesn’t take away the diagnosis but it can go a long way to helping you feel a bit better.

Mail me anytime Sam

Debbie xx

18

Hey Sam,

I haven’t read through everyones post! so i’m not sure if someone as covered this, I wanted to say about my nose! I like you get the horid feeling on my face but it’s mainly my nose I have to say it actually feels numb and burning… I am VERY conscious about it as well as un comfy!!! I have seen my neuro and i’m now awaiting my appointment for a mri and lumber… I have many other symptoms I won’t list them…

Hope you got on ok with the doc

Andrea

19

Pm64 (strange reffering to someone as that lol ) my neuro had wrote that on a letter to my gp .To be honest i didnt actuley ask him what i thought it might be as i would rather of waited until after the mri which im having next thursday .I suppose its just what he suspects it might be, but thought he might of had a few other ideas as to what it was .

I am now on amitriptyline and detrusitol.My doc said she will wait to see what the neuro wants to give me after my scan .

Andrea i hope you dont have to wait long for your mri .

Sonia are you going to see your neuro soon ?You should go and see him if its all coming back again .My face doesnt feel completely numb ,more like when you have just had a filling and the injection is starting to wear off.Mine is also down my right hand side of my face .I feel like im touching it all the time as its so strange and uncomfortable .

I agree with what you say Debbie .Im feeling like if it is ms or whatever it may be , i just want to know so i can get on with things .Im going to stay working ,keep trying to lose weight and try my best to get on with everyday life .Like you say with abit of support ,treatment etc ill be fine im sure .

Thanks for everyones support xxx

20

Im in limboland at present had a bad weekend with pain in legs and arms boy there should be a law against them! Their brief but dam painful, still not buying the functional diagnosis that i was given. My symptoms at present are dreadful but brief shooting pains on and off throughout the day, a numb area under braline on back that tingles every so often and worsens when doing activities like the washing up my back really seems to tingle like mad then it feels like someone is pushing against that area. I really dont feel right i get little zaps all over the place on some days then dont get them again for a while really strange. Been having problems for 7 months now and gradually getting worse. Had mri and await results but dont think they will find anything as its my spine i feel is the problem. I will keep pushing i havent felt this strange before. Anyway i wish you all a.happy christmas and a happy new year.