Hi, new to this sort of thing so forgive me if I ramble! Just wanted to explain my symptoms and get any advice as I have a neuro appointment coming up soon and am very nervous and just want an answer now really.
2009 – Extreme fatigue, investigated for sleep apnoea as also snoring – all clear as are blood tests. Lose weight as suggested by ENT and feel a bit better.
2009-2010 suffering from bouts of sleep paralysis, go to the doctors but nothing they can do. This then eases off.
2010 – suffer the most painful and debilitating leg spasm in the top of my right thigh, almost takes my leg out from under me, go to the doctors and get Diclofenac, it twinges for a few days then dissipates. Start to get very tired and physically exhausted, randomly lose hearing in my left ear when I’m eating or have just eaten, go to the docs, more blood tests and ear checks come back fine.
2010 – 2014 – notice pain and discomfort in my legs when standing and get the occasional twinge in the same leg. Go to the doctors and diagnosed with sciatica, given more diclofenac and told to come back in 2 weeks. During the 2 weeks I suffer another huge spasm and go back. Have an x-ray which comes back as very early signs of arthritis, slight curve of the spine and Spina BiffidaOocculta, given co-codamol and more diclofenac, although the is no pain isn’t in my back?
I then started getting twitches in my arms, vibrations between my shoulder blades, legs and buttocks, twitching and cramping in my legs, pins and needles in my hands, bad headaches and auras in my eye (optician also found a spot at the back of my eye), hearing noises and smelling food in my sleep as well as further sleep paralysis episodes. I also get a weird feeling/tightness right deep in my chest and jabbing pains in the sides of my ribs.
I get these symptoms almost every day, not all day, and I don’t have any back pain. Been getting very confused and making silly mistakes at work, I drop things daily and have been feeling very tearful at the slightest thing. I have a neuro appointment in a couple of weeks and although my family know of some of my symptoms I haven’t told them of my suspicions, as I don’t want to worry them if it isn’t diagnosed, this post has been a bit of a relief to this to get it off my chest! I am just exhausted and every day is a struggle.
Thanks for taking time to read my tale, Any advice or other possible diagnosis welcome!