Hi everyone, I support my partner who has progressive. She also suffers anxiety, irritable bladder, depression. GP has prescribed a cocktail of drugs which she is reluctant to take, her hygiene is almost nil so has infections . Low mood, crying, broken sleep, verbally abusive, no appetite. These are the barest details and I’m at my wits end what to do next, even with nowhere to go I am at the point of walking out.
Before you walk out, talk to the MS Nurses, explain how close you are to leaving and ask them to contact the appropriate team to arrange some urgent respite care so you can get some “me” time
Hi, oh dear . I do feel for both of you.
Obviously something has to change,
Have a chat with social services or like GCCK says, the MS nurse.
Many thanks for your reply, I’ll contact them.
After being made redundant and thinking my life was over after my diagnosis of Ppms in 2014.
Reflexology helped me, i ended up going back to college to learn complimentary therapies.
No energy for carrying big portable treatment tables now, im just a house husband and make my partners tea at night she works full time. I think i hold her back, i cant carry the shopping upstairs, but i can use her oven and do the washing i just do what i can.
After living with ms for 9 years now i mostly get oxygen therapy and take fultium D3 which is vitamin D. I feel bad going back to bed when my partner goes to work, research oxygen therapy that will help her fatigue, im also eating one banana every day to help my potassium levels, also im trying vitamin B12.
Its a beautiful day outside but i hardly ever venture down the 4 flights of stairs unless i really need to. Just giving you a little insight to my life feels living with ms, Lovely day but if i go outside i really need a reason, catching rays ain’t one for me.
I think were lucky after watching the thing about what goes on in north korea on iplayer.
There’s plenty of people who’ll hive you good advice on here. My ms downsides, mobility and fatigue. Just glad i can still drive around safely with my leg splint (AFO)
Loads of things can help, this is a great site to read everyone’s situations and peoples relies, everybody’s different but hey ho.
Anyway Chin up,