Very interesting stuff.
I was on a double blind trial of Tysabri for SPMS for about 3 years. None of us knew if we were on the active drug or the placebo. Just about all of us suspected we were on the placebo when it seemed there were no changes in the measured progression of our MS.
Then the drug company pulled the plug on this global trial.
2 years later I found that we had all been on the active (and expensive) drug.
My point here is that at different times and for various reasons we all had numerous perceptions and measurements and comparisons. I for one seem inert to many powerful drugs whereas others have huge main & side effects. It must be pretty difficult to come up with hard and fast data. In my opinion the best we can get is the balance of probabilities based on a vast number of cases and trials.
I would like to think that organisations like the ms society keep an eye on loads of different information sources and if there is compelling evidence in one direction or another they will shout it from the roof tops.
This is why I am careful when offering opinions om DMDs, what works for one person is the best DMD for that person.
So please keep an open & questioning mind whilst researching the therapy for you.