Hi everyone. I am 33 and was diagnosed with rrms at 24, i had my first relapse at 24 then once i started my tablets i was foing amazing until recently i had another relapse and because my last one was about 9 years ago i am struggling to accept again it feels like the 1st time all over again as i forgot i had it or was just in denial. Now am 33 i cant copy with my body changing without any say in it. And thinking i will never have a baby etc. Does anyone know how i deal with these feeling as its wearing me out. Thanks
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Your experience takes me back to when my first-line DMD finally stopped working - it felt like being dx all over again. It’s not a good place to be and I really feel for you. I hope that you soon have a plan in place to escalate your treatment and get things under control again and in a way that allows you to do what you want to do in your life.
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Hey, I’m 31 and first time posting here too. Just been diagnosed with rrms so not yet had any treatment but also have had symptoms (not decided to be MS at the time) since mid twenties. It is rubbish. But your having had nine years between relapses sounds quite hopeful to me. Are your symptoms still continuing now? Is the having a baby fear related to the DMTs? I’d read that pregnancy has been shown to lessen the impacts of MS. Looking for all the hope at the moment as that’s definitely one of my worries too. I’m expecting that I’ll regularly have times of feeling exhausted and emotionally drained by it all, but then day by day will come to terms with changes and progressions. Focusing on the positives. Are drs able to give you any guidance on how often you might get relapses, or whether they get worse each time? Sorry not much helpful advice, but out here in the same boat with you x
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