Grrrrr , I’ve now been off the methylprep for 5 days today , I feel horrendous ! So weak and tired and I mean weak , my mind is foggy and my vision is off, my joints hurt … , 500mg a day for 5 days , I really wish I’d never taken them !
Gaz you really must let your MS Nurse know of the withdrawal problems you are having if nothing else it will mean she has a record of it for future reference. Also see your GP he might be able to give you something to help.
Hang in there it won’t last much longer.
Jan x
I second what Jan has said. You should try to get a GP appointment and talk to the medical professionals about your extreme reaction to the steroids. If you’re still feeling this bad 5 days after, and it’s more about steroids than the relapse taking its time to remit, (ie depression, teeth gnashing, sleeplessness, feeling bruised etc), then you might benefit from a short course of for eg diazepam or another sedative type drug.
I know it’s not easy to admit to those feelings in person as opposed to the anonymity of this forum, but at this point, what have you got to lose?
Sue
Gaz
I had a relapse a month ago and was on 500mg steroids for 5 days. Coming off them I felt awful too with bad vision and generally felt crap. It lasted for a week but then I suddenly improved and I feel much better now. The relapse has left its mark but I feel better. Stick with it mate, it will get better and you should improve soon.