Hi all - in case anyone is interested…I saw a notice at the gym where I swim advertising “new one to one neurology exercise therapy.” Decided to give it a go - had an hour assessment, free, and start proper half hour sessions next week, which are reasonably priced, but the attention I got was better than all the physio I’ve been offered, as the therapist really understood the problems and limitations. She already got me standing taller, corrected posture, gave simple home exercises, and got me heel/toe walking. Will report back on how it goes, but the point is, once we can get specialist from people who properly know what to do, we can hope to improve or at least slow down deterioration.
I wish that there was a gym doing it near me, Iv’e had to wait so long fo neuro physio and had two sessions and then she went of sick and that was over a month ago.
That sounds fantastic Lynda! Keep us informed.
great news i had some neurophysio and i was shown how to do them at home,and can even do them in bed when i am ill ,to keep my legs working,they really know there stuff.
Sounds fantastic! The neuro physiology I saw a few years ago was fantastic…I still do the excersises when I’m able.
Hope it goes well for you,
Just to agree with everybody else, my experience of neuro physiotherapists has also been really good. It is a very different branch of the profession to the more usual injury based physiotherapy and is a lot less “no pain, no gain” than that type. Building up muscle strength et cetera after a broken leg is a very different therapy to helping people with neurological conditions.
I have had three separate courses of neuro physiotherapy in the past few years all of which have been beneficial. The problem is, like all exercise, you do have to keep up with it to maintain the benefit and I am, to put it mildly, a lazy mare.
I am very lucky to live in north east Suffolk as I come under the auspices of East Coast Community Healthcare. A number of services are grouped together, talk to each other and surprisingly, you can refer yourself. They come under the NHS so there are no fees to pay.
I have used a number of its services such as OT, Continence and, of course, the MS nurse and the service has been outstanding. It also has a Physiotherapy service specialising in neurology.
The long and the short is that I have benefitted from numerous physio sessions and been given many exercises to carry out at home. As with LyndaT, the exercises focus on core strength, posture and balance. I had not realised that concentrating on pulling in your stomach and clenching your buttocks had such a dramatic effect on posture and balance. Some of the exercises I can do sitting down whenever the motivation arises whilst others such as bridging and leg lifting require some planning as they require getting down and working on the floor. Getting up again is a big problem. On good days I can still do this and I am carrying on whilst I am able. Doing them from a bed does not give enough support but I think this will have to be the answer before too long.
Motivation is the big issue, as already stated by others, and some days it abandons me completely but I try to do the more taxing ones twice a week and the easy ones daily. I am sure the psychological benefits are probably greater than the physical, but who cares. I would be interested to note if anyone else has had similar positive experiences from East Coast?
Hope all goes well