Hi all,
Am due to start rebif tom, my ms nurse coming out to give me my first injection, am really nervous scared about awfull side affects.
anyone else on rebif?
I started Rebif in July. If your dose is being increased slowly, the first week or so is really easy - the dose is so low, it has only very mild side effects, if any. I found I was fine on the next level too although I did find that it gave me insomnia - apparently it’s one of the less common side effects, but I’ve reduced it by doing the injections in the morning.
The final, 44mcg, level has not been so kind re the “flu” effects. Mind you, I can only take paracetamol and I’ve heard ibuprofen is more effective.
Anyway, it’s now been 3 months and at long last it looks like my body is adjusting - last week was not too bad at all 
I make sure I take 2 paracetamol with my injection. I also take 2 more when I start to feel fluey or every 4 hours even if I feel I don’t need it (whichever comes first) - if I miss the 4 hours, the flu sets in and paracetamol doesn’t really get rid of it 
Hopefully you’ll be absolutely fine, but if not, try ibuprofen & paracetamol. Stick with it too - if it’s wearing off for me, it should for you too - and if we are suffering, just think what our MS is doing! (Yay!)
Good luck
Karen x
hi karen
was wondering if you work? and if you have been well enough to go into work when starting rebif
Sorry, no, I don’t work any more. Can’t see why you wouldn’t be able to go into work though - couple of paracetamol or ibuprofen and I’m sure you’ll be fine. Plus being busy will take your mind off any wee aches.
It really isn’t that bad - honest!
Kx
I’ve been on rebif since January … and so far I havent had any major side effects. Not had any site reaction marks, i get the occassional flu like symptoms but very rarely. If i do feel like i’m getting fluy smptoms then i take iburprofen every 4 hours & that seems to help.
Good luck with the jabs x
Jac x
I’ve been on rebif since January … and so far I havent had any major side effects. Not had any site reaction marks, i get the occassional flu like symptoms but very rarely. If i do feel like i’m getting fluy smptoms then i take iburprofen every 4 hours & that seems to help.
Good luck with the jabs x
Jac x
I started Rebif just over a month ago, I have just gone up a dose and the flu like symptoms seem to have appeared. I find paracetmol and nurofen are great :0)
I tend to do my injections at night around 9pm so I then sleep through any symptoms. I have had a few site reactions but just keep on rotating the areas I inject. Are you using the rebismart?
I work full time and apart from feeling abit groggy the morning after an injection I have been coming to work as normal
Hi Suzie,
I have been taking Rebif for several years and right from the outset I haven’t noticed any side effects. I have hardly any relapses now either, so it’s win, win all round!
Good luck.
Hi Suzie
Good luck with it, I’m sure you will be fine.
I’ve been on Rebif for 2 and a half years now. I started on 22 mcg and increased to 44 after 3 months. I did get flu type achiness for the first few weeks but my legs are often achy anyway so it was hard to tell which was which really. I took ibuprofen with the injections and up until lunchtime the next day if I was a bit achy, I never had to take a full day off work. Sometimes I went home to rest for an hour or so and then went back to work.
I’ve always done my injections at bedtime (well apart from the first one which I had to do at hospital with the nurse) and I slept through the worst side effects. I still get red skin reactions but they are not painful and don’t bother me.
Best of luck, I don’t regret it for a moment as the Rebif seems to have slowed down the MS for me and that’s the main thing. Take care
Tracey x
Hi Suzie, just to say Good Luck with the rebif injection. You wont need it! You will be fine- don’t worry. I’ve been on rebif for over 2 and a half years - no relapses for over 2 years and no side effects other than low blood count. This is something they will monitor you for. Roger
I’m waiting on my ms nurse tomorrow at 9am so its a bit snap but I’m going on capaxone that is a daily injection how often do you have to inject the rebif,
I’m a bit apprehensive about tomorrow, but all the support I’ve had on here has lessened it a lot,
Al x
I am waiting to start Rebif Smart - probably be the new year now, and i am a bit worried at the possible side effects.
Just curious but why are you not starting on Tecfidera?
It is perhaps telling that this topic of conversation was started over five years ago…
Just saying.
All the very best to you!
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I was thinking exactly the same as Paolo. Why inject - which actually isn’t very sore at all and I had no nasty side effects. But did hate the red marks injecting left.
Taking a tablet just seems a lot easier.
Would really like to know why people are starting Rebif. In my area I was told price of Rebif vs Tec was the same.
good luck in whatever treatment you end up and great you are starting treatment
hugs
min xx