Hi, did anyone watch
Extraordinary People on channel 5 last night?
It was very interesting. A 50 yr old woman, who had previously been a very fit and active Social Worker, after a car accident ended up having a most unusual health condition.
It was all very MS like or even ISP like, which I have been diagnosed with.
She was plagued with the most severe spasms, which made her whole body go rigid. Mixed in with this, she would get chest pain. She`s had umpteen tests for 14 years, with no diagnosis…yeh, very like me and a lot of you, eh?
Then a neuro tested her for SPS. There are only 1 in a million diagnosed with it and there is treatment available, which gives people back their life.
They looked for certain anti bodies, which cause the brain to send mixed messages to the muscles and this turns them excrutiatingly stiff.
It turned out that the lady didnt have SPS and she is still un-diagnosed, but having the awful problems.
She was waiting for a referral to a neuropsychologist…there was a sort of mention that it was all in her head! I am puzzled by that.
Baclofen/tizanidine were never mentioned.
I wondered why…?
What did you make of the prog, if you watched it?