Hi Guys. Newbie (to the forum), but an old timer to MS.
My name is Cheryl. I was diagnosed with RRMS when I was 18, that became SPMS when I was about 40, and I am now 57. I consider myself fortunate that my progression has been very slow. I am in a wheelchair now (2 years), but still transfer easily and live on my own without any visiting carers. I also have 6 dogs (elderly) that I feed/clean/groom/nail clip myself, so fairly active. I still work (bookkeeping) from home. I would love to hear from people older than me that have a similar symptom history, that can tell me whether they are in a care home. Iknow there are no guarantees with this disease, but I would love to ascertain a very rough percentage of people with this slow progression, where its likely to take me in the next 20/25 years. Is it highly probable that I will need a lot of care? Please disregard any other health issues.
Hi Cheryl I have had MS since 1972 and have managed to live a happy and eventful life. I’m 80 years old now and it’s only in the last ten years that MS has really stopped me doing what I would like to do. I now have to be hoisted. dressed etc an d have carers for one hour four times a week but I’m lucky enough to have my daughter living with me and she is my main carer. My MS was diagnosed way back in 1972 I’ve had no DMDs but have survived without them!
Try to remain as positive as you can, stress is a bad bed fellow,
Cheryl dear what will be will be, excuse the words of wisdom from this oldie-Essie x