I HOPE M IGHT HELP THOSE WAITING FOR A DX, HAVE YOU EVER HAD A CAR CRASH OR SPINAL INJURY IF SO HAVE YOU EVER HAD A MRI OF YOUR SPINE THERE IS A CONDITION CALLED SYRINGOMYELIA THAT CAN CAUSE ALL SORTS OF STRANGE SYMPTOM ALOT LIKE MS THESE INJURY CAN CAUSE A SPINAL CORD CYST [SYRINX] WELL WORTH CHECKING TO SEE
I have been found to have one that runs from T4-T9. I did have a MVA but my consultant seems to think mine may be congenital and an incidental finding. For me unfortunately it doesn't explain all my symptoms so still searching for answers. I have also found a couple articles in the Brain journal which talk about syrinxes and how they may be as a result of MS pathology sometimes.