Hoping someone can put my mind at rest. I feel a bit daft asking.
I have been dx with RRMS. In the lead up to my dx I had many different symptoms.
- Two previous episodes of numbness in mouth and stabbing pains in head over previous two years.
- L’hermittes,
- Numbness in my feet.
- Spasticity/weakness and numbness (varied) in my knees, making straightening leg difficult in mornings or walking wobbley, which made me limp when I walked anywhere. Very poor balance when walking. I could run two miles a year ago but when it first happened I was getting over taken by pensioners, my legs just wouldn’t go as fast as I told them too, even worse on slopes…very odd.
- Almost paralysis of right hand, unable to extend fingers which were curled up and would not move. Numbness of right arm, hand, side and spactisity in arm, which has remained.
- Fatigue,
- MS hug which I still get daily to some degree, wrapping round my body.
- Complete lack of co-ordination of right arm which meant I could not write, which I think lead to my urgent MRI. I failed the touch finger nose test by missing my head!
- Freezing sensations, tingling in right hand, arm etc.
- Mild bladder retention.
- Vibrartion like mobile phone implanted in stomach.
- In clinical examination I could not do heel and toe test my back foot would not move. I had hypermetric saccades (apparently?) and brisk jaw jerk.Reflexes brisk and planters mute and clonus at each ankle (not sure if this is normal or typical of ms)
MRI scans showed a number of areas of subcortical white matter in brain plus lesion at C2/3 of spine.
However the neuro asked about previous medical history and I forgot until now about an accident I had over ten years ago where I pulled muscles badly in my right arm, which caused weakness and tingling in finger tips for a long time after. It did get better ages ago, so I forgot to mention it (I am not good at remembering bits, need to make lists).
I will not see my neuro now for a long time. Do you think given my list of symptoms they may have considered a different diagnosis? It is playing on my mind as am now recommended for DMD’s and am worrying about not mentioning it, especially as they asked about previous trauma. I am not looking to change diagnosis just worried about how important missing out something like that is. When the neuro asked if I had any thoughts what it may be I did say I had looked at MS but thought it more likely something was pressing on my spinal cord (having done google style self dx - not advisable!), which the neuro showed me nothing was before dx of ms.
Sorry it is so long. Any Thoughts?