Dear Dr ########
I attended for my yearly appointment in your clinic last week, but was seen by someone else; presumably a locum or staff grade. The appointment time had already been changed twice before.
Despite being the first on the clinic list, he beckoned me into the consulting room half an hour late, having just finished his lunch. He did not seem to know what sort of MS I had, and was busily reading through your notes as I politely explained that I have PPMS and described a few of the the main symptoms. He then asked me to walk across the room, then tested my knee strength. After this, he asked what medications I take. Seven minutes after entering the consulting room he kindly informed me that everything seemed ok, sent me on my way and said I would soon receive an appointment letter for a years time
So, may I please request that when September 2015 finally comes around I am seen by yourself. Nearer the time, could you please ask your secretary, or anyone appropriate on the booking team, to inform me if you are not able to be present in the clinic, as I would rather not have to experience this situation again. Do note that I have to take unpaid leave to attend these appointments.
You see, in the past 18 months I have officially had PPMS I’ve only been to the GP ‘once’ regarding my condition; since 2007, when I first started developing symptoms in earnest, to November 2012 when I finally decided I needed help, I had only been to the GP twice; so that’s three times in over seven years! I have never called an MS nurse, knowing how busy they must be.
Considering the minimal demand I have made on the over-stretched NHS, especially considering my condition, I do feel the least I deserve is a twenty minute consultation once a year with a professional who actually knows about my symptoms, and little bit about me.