Hi all James here been part of the ms crew since 2021 , so my ms nurse rang me on Monday evening . Abit random was asking how I’m feeling etc before she moved on to tell me I have tested positive for JC virus and that they may need to stop my DMT which is Tysabri . Should I be worried ???
I was shown some info on this at my appt yesterday and my ms nurse said that it’s extremely rare apparently she knew of only a handful of cases worldwide. I hope they come back to you soon with a plan.
You can calculate your risk here - Understand your risk of PML with Natalizumab