Seeing GP tomorrow

Hello everyone,

hope you’re all enjoying the closing ceremony.

I’m seeing my GP tomorrow and he’s going to decide whether to start me on amitriptyline or not and also to refer me to the hospital (I’m going to push for this anyway as really fed up now). I was wondering if anyone else has had this medication and does it work, side effects etc.

I’ve been off work for 10 days as was an emotional wreck last time I saw him. I do feel a little better but not sure if I’m ready for work or not - my legs are still really painful and I am sooooooooooooo tired even with just a small amount of exertion. I work as a palliative care nurse (long shifts), so it’s quite busy and I’ve found recently that the more ‘brain work’ that I do, the more spaced and light-headed I feel. Problem with the NHS is that 3 sickness episodes and your days may be numbered so I don’t want to go back before I know I can cope but I feel ‘ok’ some days - dilemma so any advice most welcome

I know that I may not even have MS, but I’m taking some comfort in the support from just reading everyones posts etc so I hope you don’t mind me asking a few questions too.

Many thanks - Alison

hi alison

don’t let your gp decide…tell him you want to try it

i was dx march this year and i’m on amitriptyline plus a few others and yes they do help

you wont know until you try

take care


ps…the only thing i noticed is the weight gain

but better that than pain

ps…hope it turns out you don’t have MS


amitriptyline is a pleasant med to take. it does make you drowsy so i take it at bed time and i drift away like magic - until my bladder wakes me or the spasms!

my gp prescribed citalopram when my neuro journey first began but i didnt start taking them until i had an episode of “roid rage” after iv steroids.

good luck

carole x

This is the only drug I’m on at the moment, has helped i am now sleeping better but have weird dreams, burning in calfs and jerking legs have gone. But you will see from my recent post, I have been eating for England! I was unsure if to take it as it does seem to have alot of side effects, but not everyone gets these. Defo worth a try. Let us know how you get on.

Hi Alison

I have been on amiltriptyline for about 2 1/2 years (was previously diagnosed with Fibromyalgia). To be honest, I havent noticed that they do alot for me. I do sleep better with them, but have very lucid dreams. I havent noticed any side effects and the weight gain effect of them just doesnt apply to me… in fact I eat a lot less now and I seem to have lost my appetite as food doesnt taste of much to me. That may be to do with the other tablets I am on though - tramadol, carbamaepine and propranalol (for the many other symptoms I have), or it may be another weird thing going on with me - my face is quite numb anyway and so is the inside of my mouth on one side.

If I were you, I would definitely try them as you may find they work for you.

Good luck and let us know how you get on.

Paula xx