Hello there, My mum has had MS for the last 22 years and is now in secondary progressive stage of the illness, now i’m a carer along with my dad. Over the last 4 years or so I have had some episodes of worrying symptoms, starting with numbness in the end of my tongue which lasted for about 4-6 weeks. This happened again about 18 months ago. Then about 2.5 years ago I had numbness in my left foot, just the first three toes again about 3-4 weeks. I’ve recently had numbness in my left hand little finger and the two next to it. I have extreme tiredness that comes and goes, where I hurt so much it feels like I have very bad flu. I’m a user of sign language and sometimes signing for more than 30 seconds really hurts my arms. The gp finally referred me to a neurologist who did lots of tests on me last week after getting a full history. In these tests it was identified that I have loss of strength in my left leg, quite marked. Also lack of response on my left foot when run up like tickling. I’ve been sent for a blood test to rule out other things and have a brain and spine MRI booked at the end of September. The neurologist said he would write to me with results. I now wonder if he doesn’t suspect that it is MS as would he really write to me following tests if it turns out I do have it? I’m really quite concerned about the weakness issue in particular and also a double vision issue with looking to the left that he identified as well. Do these symptoms sound like MS to forum users? I feel scared of what is to come and worried that my neurologist doesn’t think that I am for real. Any advice please? Thank you.
Hi Cornflake! With your symptoms & family history I can’t imagine any doctor dismissing your symptoms as you being ‘not for real’!
But saying that they can be caused by a miriad of things - so now is not the time to jump to conclusions x
Unfortunately all you can do is wait for the MRI & results and in the meantime try not to worry x I know that’s easier said than done but stress will only make things worse xxxjenxxx
Hi, it could be something other than MS. There is a small chance of MS being passed on, but even tho` some families do have more than one person with MS, it is not generally thought of a genetic.
But having said that, you are getting the tests and investigations. If your neuro thinks there is something to be concerned about, I
m sure hell tell you in person.
I know how worrying it is for you, as I was investigated for years, with no tests coming back to prove MS.
Try to get some good quality rest, eh?