Forum

Sativax

Has anyone managed to get this prescribed

For two years - now the senior partner at the practise has said no. l am about to change GP’s in the hope of being able to get it prescribed again. l have written to the ‘new’ gp explaining why l want to change and she has rung to say she would be pleased to have me as a patient and l need to go and fill in a form.

So watch this space.

F.

only on private scrpt im afraid and thats not cheap. x

How good is it Zelda? And how does it compare to other pain relief?

I try and use oral morphine for those times when I just can’t stand the (muscular and hug ) pain any longer, but I am wary of using it too easily.

Thanks

[quote=“Gillian44”]

How good is it Zelda? And how does it compare to other pain relief?

I try and use oral morphine for those times when I just can’t stand the (muscular and hug ) pain any longer, but I am wary of using it too easily.

Thanks

[/quote] i fnd it works incredibly well for pain without the spaced out zombie effect of other meds ive tried in the past. and its up to me when i need a spray, rather than set times/dose of other meds. its not adictive either. i love it. just wish my pct would show some compassion.

x

My PCT will not give it to me or anybody else with MS.They base their refusal on the results of a trial. I have it in writing from one of the worlds leading pain specialists that the trial was flawed.It comes down to money,pure and simple.If I was dieing of cancer and needed it for pain relief I could have Sativex.

One of my neighbours has stage 4 cancer and there is no further treatment for him. He is a good bloke and doing what he can to ‘finish well’. We haven’t sorted it properly yet,but we will and he will try and get the Sativex,even if he doesn’t need it, and give it to me. That is a good bloke, and one ‘Right up the PCT’.

Wb

Hi folks!

I was lucky enough to get Sativex on the NHS (Mid-Sussex PCT) …albeit at the 3rd time of asking!

We (the GP and I) were hoping it would help with nerve pain, so I ‘ramped up’ the dosage over 4 weeks, until I was using 9 doses per day.

Sadly, this medication did not work for me, but at least it didn’t cause any negative side-effects

Thing to bear in mind is that we’re all different and it may well be a great help to others. Over the last few years, I’ve become a firm believer in ‘you don’t know until you try’.

I’ve heard that getting this medication is a total postcode lottery, but I’d badger my GP and offer to pay for a private prescription to show that I was serious about at least trying Sativex. It may be just the thing to help? I strongly suspect that any reluctance is purely down to money …what a caring profession this is!!!

Best of luck with trying this medication !!

Dom

Hiya

I gave this a whirl last year but it was on a private script costs of £410 for 3 vials. On 1 or 2 sprays a day it was coming in at a monthly cost of about £100 or there abouts as it would last me 4 months.

I’m not too sure about, though, as I was feeling a bit sickly, my legs went weaker and a different mood started to appear but was that the MS? I might try it again as I was under great pressure over a big house move at the time and stress is no good for MS.

Oh and everything works differently for different people. No one size fits all with the MS buddy!

Take care,

Marty

On the Drug Profile Statement - lt says that a trial was done to see if there were withdrawal problems with Sativex - none were found. BUT withdrawal of Sativex did result in increased spasticity and mobility problems in people with MS. This goes to show it works.

F.