Hello everyone!! I know it has been a very long time since I have been on here but my health has been dreadful the last 4 MONTHS!
Started on 20th of August put my contacts in as we were going out for a lovely lunch, half way through the meal I thought oh no I have put them in the wrong eyes (right eye much worse vision).
I felt rather fatigued and thought I would have a lie down for an hour, I woke the next morning!!! Opened my eyes full on diplopia which was my first symptom on my MS journey 11 years ago.
Went to A&E to be admitted for I.V steroids have not had them for 10 years so no worries there, they were really lovely and when I was finally hooked up they said I could go home every evening 3 days infusions all good. Started to improve and the vision was almost back to normal, the local neuro said I didn’t need any oral steroids to help and I just had to let time be a healer. Hmmm
Jump to the end of September vision worse than ever and I had no muscle control at all, legs not working, tremors out of control and no way could I self-cath. Now in October we went to see a private neuro who prescribed oral prednisilone high dose via my GP I am on a reducing dose now and things are very slowly coming back together.
Wednesday I had a supra-pubic catheter fitted I was very wary when it was first suggested but now I am telling myself why were you so anti having it done?
I think it was a bit worried about looking like an old lady!! But hey there we are. Oh and just a little end bit I am due to go to the John Radcliffe end of Jan beginning of Feb for DBS to get those stupid tremors under control.
Golly I have written a small novel here apologies if it makes your eyes hurt!! Julie x