Hi all, This is my first post. My hubby was diagnosed nearly 3 years ago now with RRMS. Since then however he has had lots of symptoms and things with him have continued to get worse. He’s now self catheterising and is in constant pain. We can no longer have sex without help and his bowels don’t work correctly. We just feel that since initial diagnosis things have been non stop and where we were told he would go into ‘remission’ this hasn’t happened, it’s just seems too much. Is it worth maybe mentioning to his neurologist how we feel or is all the above completely normal? sorry for waffling on, but I don’t know what to do. We get no support from family so it’s basically just him & me. 
Hi Bbmonster,
Don’t suffer in silence, speak to as many people as you can, including your GP, MS Nurses etc and get as much help as you can. And keep coming back to this website. You could also try the OMS site as well its very good.
Steve
Thankyou. What is the OMS website?
It’s Overcoming Multiple Sclerosis, the site is overcomingmultiplesclerosis.org
I would also reccomend you read ‘Overcoming Multiple Sclerosis’ by Prof George Jelinek you won’t regret it.
Steve
If your husband has not had any remission, I would question the diagnosis of RRMS. It soundd from what you say as if he has a progressive form of MS. Does your husband take any pain relief? Has he been prescribed anything? If not, speak to his GP or neuro.
Also speak to his MS nurse about what help is available: occupational therapist, adaptations at home etc.
Don’t put up with the situation: there is help out there.
Hi He’s on Capaxone and also has painkillers amongst other things. Pregabalin, tramadol etc. I’m going to speak to his neurologist Friday at his appointment. He said he was stable! Well if this is stable then we don’t want unstable. Seriously struggling at the moment (as a wife, I know it’s horrendous for him).
Hello and welcome.
I agree, your husband sounds far from stable to me, good luck when you speak to the neuro.
It is horrible to watch someone you love, in pain and distress. I have MS but my husband has been ill on and off for a long time…it’s become the norm for us.
Try to get as much support as you can…you’ll only end up making yourself ill if you try and cope on your own.
Take care
I’m deffo gonna kick some butt on Friday! We don’t get much support, never hear from his parents. It’s just me & him really. We get through it. We have each other. It’s becoming the norm for us now. Do a lot of people have good neuros? This one is our second. The first just said ’ he’s got MS, he could be in a wheelchair in 20 years’. WOW!! Not great xx