I’ve relocated abroad following over 5 years off unsuccessfully trying to obtain a diagnosis on the NHS at Queens Square.
My symptoms have now have become considerably worse to the point where every day life has become an ordeal.
Following numerous tests in London, and numerous appointment cancellations and very much getting the impression that any diagnosis would be based on a highly subjective personal relationship with the specialist.
It was explained that the tests were to rule out other possibilities. Which were all done. And that the actual diagnosis of MS would depend significantly on the trust between the specialist and the patient, particularly the descriptions of the symptoms. It was sad to note that factors such as clothing, mannerisms, speech and other such factors would play a significant role in diagnosis. This would include perceived socio-economic status.
Eventually I gave up having found the process quite traumatic I had no further intention to put myself through it any further. I did my best to manage my condition through diet, after-market medication and sheer determination to get through the day.
However, I’m now at a point where the symptoms have deteriorated, and so have moved abroad to find a more sympathetic rheumatologist privately. Here I also have direct access to labs and can order the tests directly.
I’d be very grateful if someone could recommend initial tests I should be looking at. Including testing for viruses (Immunology). I understand that tests often need to be repeated when there’s a full blown attack underway.
I’ll be working alongside with well regarded specialists, but I would now like to take a more proactive involvement in the lab work too. I’m now in a fortunate financial position where this is possible and I am seeking out specialists in the country who are significantly easier to work with.
Any advice would be gratefully received.
Edited to add: I was never given the test results until I requested them under the data protection act from Queens Sqaure. I’ve not had the opportunity to go through them as the fatigue & issues with cognition have been severe.