I have relapsing remitting ms. I had a severe relapse last May (2013) which resolved fairly well with time and just left a ‘residue’ of weakness and less mobility. However, over the past year my legs have been weakening little by little and the numbness in my feet has got so bad that I just am not sure where my left foot is! I had an appointment with my Consultant the other day and she told me that it is still R&R but with progression. I’m due to go onto Tekfedira soon and it was explained to me that if it keeps progressing even while I’m on this new treatment, then it may indicate that I’m moving on to secondary progressive. But if the progression stops with it… all is well for another while at least! Anyway, I always thought RRMS was by nature an ‘on/off’ type of problem but I didn’t realise that it could come with progression too. Does anyone else out there know anything about this and maybe give me some advice?
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