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Relapse or progressive ms

Itoday tried to contact my ms nurse but she has left but did manage to get hold of another I’m not sure if I am having another relapse or if thing ate just progressing I tried to explain how things are going and how I was feeling but as I had only had a relapse in August last year she doughted it was a relapse and if it was she would not recommend a treatment of steroids for it, I only see my Niro yearly and that is only regards my dmt as on beta freon its very hard to describe how things are going over the phone and especially to someone who does not know you or how you are
Any help please

When I'm relapsing I always see the ms nurse in a relapse clinic. I think she should've offered you an appointment, can you call her tomorrow and ask to see her? If you're not relasping it will reassure you and if you are you should at least have a record of it down in your notes.

Is she supportive? I hope so, if not try your GP. I've found over the years symptoms can come and go  quite dramatically, but generally, if I think I'm relapsing, I am. I hope you get some help soon and feel better,xxjo

I thought I’d had 5 relapses last year, when I saw the Neurologist he said some were probably urine infections and advised me to persevere with self catheterising. I still have flare ups but not as many as last year. My nurse said I’d only actually had one relapse and it seemed to keep coming back. Urine infections can be very similar to relapses.

Love Wendyx

I'm having a bad relapse at the moment (starting IV steroids tomorrow), but I've had a bad time since January.  Relapsed beginning of January and this lasted for about 8 weeks, felt back to my normal for two weeks and then relapsed again.  This second relapse was neuropathic pain in my arm and hand which was new and increased weakness in my legs.  I started Gabapentin for the pain two weeks ago (worked a treat!) but since then my legs have got worse and worse to the point I'm at now.

Whether this has actually been three relapses or the second relapse has taken ages to develop I'm not sure but I think it goes to show that yes you can relapse very closely together.

Hope this helps.

Lynn

x

Lynn (Minnie24)

I notice that you say you were given Gabapentin two weeks ago, and now your legs are getting worse.  That happened to me when on Gabapentin - I found I could hardly walk (one of the possible side-effects I think).

I was given Pregabalin instead, which is a similar medication, used for neuropathic pain, but doesn't have the effect on the walking.  You may want to ask your Neuro or GP about changing in case that would help with your legs.

Hope you get some help.

Bren x

Thanks Bren,  I did wonder that too but my MS nurse is sure it's not the Gabapentin because of the type of problems I'm having.  I hope it isn't both because I think it's great and because I'm taking the steroids (don't want to be taking them unnecessarily)!

Thanks again for thinking about me.

Lynn

x

 

I suppose she feels it is unlikely because of the interferon, but it is possible to have relapses close together, and August til now really isn't that close together.

many thanks i have now got a appointment for next tuesday at the relapse clinic so lets see

But thanks

many thanks i have now got a appointment for next tuesday at the relapse clinic so lets see

But thanks

many thanks i have now got a appointment for next tuesday at the relapse clinic so lets see

But thanks

Frustrated.. To look at me you would think i'm well. I don't feel it always!! Whats the definition of a relapse? Ocassionally I ask myself why can't I cope. Why am I usuless at doing what other folks manage so easily. I question myself!!! Am I useless, lazy, blonde!! (mean that in a nice way). Don't even know myself why I can't match what other people manage. Wish everyone on this site good wishes always. Ann :-)