im a tad confused. I was pretty sure I had transitioned into SPMS from RR…last relapse Jan 2013. But have gradually got worse. I have been on rebif and tecfidera…recently I came off at the end of February and Rebif just didn’t work out due to marking my skin too much. Anyway I came off the Tec as I felt I had progressed further since being on it, particularly with my mobility. All has been the same since coming off it.
Until this morning. I woke with the strangest sensations in my lumber area. As the morning went on these have spread down my legs into my feet and I have burning sensations in areas of my arms. My walking is somewhat more dodgy than usual. And legs/co ordination is difficult and legs a bit stiffer. I usually have Pilates tonight but thought best not to go because of this and the fact the weird feeling is affecting how I feel the floor etc. Hence why the walking is dodgy. This to me feels like a relapse and sensations are usually a part of my relapses in the past. However I am confused as if I’m SPMS, I shouldn’t be having relapses should I? Or is this still possible in SPMS? I am thinking I need to see the GP tomorrow and I have contacted my m,s nurse too but I’d like to nip it in the bud pretty quick if it is a relapse.
TIA you lovely people xxxx