Well I went to the Neuro’s last week, he seems to think I have now entered the SPMS stage of ye olde MS.
I agree with him that all the signs point to it, an MRI littered with lesions, a lack of relapses, 20yrs in to MS, nearly 40yrs old, can’t do as much as I once could.
So the upshot is that I am to be taken off Rebif, I’ve been on it for 13yrs so I am a bit concerned regarding this, before rebif my life was one big relapse, but since been on it i have been able to get on with life.
Anyhow I am obviously a bit concerned that the relapses will start again, as you would be.
I just aren’t 100% sure in my mind that it is SPMS yet, I can still walk not bad, I do get a lot of nerve pain in my legs though.
Has anyone else on here been taken off Rebif after so long, and how did it go.
Also there doesn’t really seem to be an exact science behind the change of diagnosis.