Due at the relapse clinic today after suspected relapse last week. Diagnosed with RRMS at end of 2017 in late 30’s, intermittent symptoms for 10 years prior to that, but during 2016/2017 things escalated with maybe 4/5 relapses.
Relapsed in Jan 2018 the week before starting Tecfidera, but went ahead and made good recovery. Relapsed again in July 2018, so escalated treatment to Tysabri.
Next week will be my fourth infusion of Tysabri, but very frustrated to have relapsed already, although it’s not as bad as previous relapses
Wondering whether HSCT will be on table given I’ve relapsed on two DMD’s, with one in the highly effective category.
Gone from keen footballer and distance runner to slow walker in a two year period, with various on going symptoms, but have had a degree of recovery after each relapse.
Any thoughts on similar experiences and whether HSCT likely to be an option would be welcome.