Hi all.
I have been told I have CIS. Waiting on another MRI of the brain and also the spine next time.
It all started with numbness around my eye and lips.
The last couple of weeks I have coldness in corner of my eye.
Is this a relapse or just the same brain lesion showing itself again?
Hi Teddybear - I was also diagnosed with CIS, some time before getting my MS diagnosis (dx). I found with the CIS I was getting all kinds of weird symptoms, including drop foot, vibrations in my lower spine, walking into walls, tremor, clumsiness, etc. I was told there was a 20% chance of it becoming MS. I have since learnt that that is exactly what neurologists are told to say, as nobody can be sure! The total time between seeing my first neurologist and having my diagnosis was 2 and a half years. Everybody’s symptoms are different, but I am pretty sure, once you get your diagnosis, and your meds, you will see an improvement with your problem. Unfortunately, the wait is the hardest, most soul-destroying thing. Sending you hugs and wishing you a happy solution. x
thank you for your reply.
yes the waiting is very hard.
Next consultant appointment is April 23
I know, the waiting is interminable. What I didn’t realise is that these neurologists can only decipher what is going on with your body over periods of time. I was told that a CIS may be simply a one-off infection, which could last up to a year. So the fact that the neurologist wants to see you in April probably means she/he is waiting to see whether something else happens. As the neurologist said, ‘in space and time’. Meaning that most MS dx’s need to be able to show on your MRI, activity or lesions in 2 parts of your nervous system, at two different points of time. For example, a lesion on the spine this year, and a lesion on the your brain next year. This I would suggest would fit the McDonald criteria. Ask your neurologist when you see them. That will perk them up! 
I was on the verge of being turned away by an emergency neurologist (I couldn’t walk!), when I used the magic phrase, ‘But surely Doctor, this qualifies for the McDonald criteria?’. Within 3 days, I was sat with a MS consultant getting my diagnosis and meds sorted out. It was a shock, and I cried, but what a relief to know that I wasn’t going mad 
x
Thank you for your reply. I have read about the McDonald criteria. But I tend to have a list of questions at the hospital and then forget to ask any. Next time I will ask my husband to remind me to ask questions. How are you doing now?
hi
Been told today I cannot have another brain mri has only had one in May 22. But i am having a spine mri next week!
If i have spine lesions can they say I have MS has i have brain lesions?