Hi everyone
I’m looking for some advice or lived experience about what to expect recovery wise after a significant first flare.
Bit of specific info about me, as I know everyone is completely different: I have rheumatoid arthritis and was taking an anti-TNF drug called Cimzia. I woke one day with tingly hands which just spread and spread to chest, back, legs. I’m calling it ‘the numb’.
I just spent 11 days in hospital with some mega IV steroids. I have been ‘home’ (staying with family who can help me with my son!) for 4 days now.
The drs are saying the Cimzia has unmasked the MS but there were lots of lesions on the MRI so I’m guessing it’s been quietly doing its thing for a while.
I’m normally a very busy single mum. I know I need to rest, I feel wobbly and still uncomfortably numb. The ‘hug’ is unpleasant. Are my hands in a vice?
I don’t feel at all I can be at home independently with my son yet, even if we take work out of the equation. But I’m a huge planner, used to running 100mph and i am struggling with the unknown.
I’m feeling confused about what to expect over the next few weeks and months.
This wasn’t a slow process I was getting concerned about, just whacked with lots of sensory symptoms.
Have others been whacked by ‘the numb’ and have any personal wisdom about what to expect next?
Is it right to just lay at home and aggressively rest? Can I do myself harm if i try and do normal things?
This is very unlike me to feel so vulnerable and under confident.
Thanks so much all x